PH News

Through the Respite for All Pilot Project, led by SE Health and Greenshield Cares, caregivers across Canada who are working at least 30 hours per week can apply for 10 hours of free, home-based respite care. For this pilot program, respite care includes personal support care, help with activities of daily living, light home support, and companionship, but not clinical or regulated health services (nursing, providing injections, managing medical equipment, etc.) The pilot runs

Alberta has launched Lung Health Check, a new program using vans to bring pulmonary function tests to rural, remote, and Indigenous communities in Alberta. Patients won't need to travel long distances for pulmonary function tests -- the vans will bring the tests to them. This will save patients money as well as time, and will make ongoing pulmonary function monitoring easier. Patients can be as young as five years old, but the vans are not wheelchair-accessible so they must b

As we know, pulmonary arterial hypertension patients' lungs don't make enough nitric oxide, which is a vasodilator. But what if patients were given infusions of cells that were altered to produce blood vessel lining cells that would produce more nitric oxide in the lungs? Would it be a safe and effective treatment? The SAPPHIRE trial intended to find out. Participants randomly received either a placebo or an infusion of cells once a month for four months for a total of 80 mil

Pulmonary hypertension (PH) is no longer the obscure diagnosis it once was. Thanks to decades of research, clinical innovation, and patient advocacy, Canada is now home to world-class PH expertise, growing networks of care, and a resilient, informed patient community. A new article published in the Canadian Journal of Respiratory Therapy — “History of Respiratory Medicine in Canada: Pulmonary Hypertension” —offers a powerful look at how we got here. Authored by Dr. Sanjay Meh

When it comes to rare diseases, Canada’s healthcare and research systems weren’t built to keep up. That’s where the Canadian Rare Disease Network (CRDN)  steps in—a new initiative working to change the rare disease journey for millions across the country. With over 7,000 known rare diseases affecting more than 3 million people in Canada, patients and families often face long diagnostic delays, limited treatment options, and fragmented care. CRDN was launched in 2024 to connec

Kate Salonga represents PHA Canada at the 2025 PH Professional Network Symposium hosted by the Pulmonary Hypertension Association (US)....

This week, Statistics Canada released the results of their crowdsourced study on the lived experiences of Canadians (and their families...

On September 30, Canadians pause to mark the National Day for Truth and Reconciliation , a time to honour the children, families, and...

At PHA Canada, we’re committed to providing clear, accessible resources to help patients, caregivers, and healthcare professionals better...

The Pulmonary Hypertension Association of Canada (PHA Canada) is proud to announce a new partnership with Vision Quest Communications...

Yesterday, Colin Van De Wetering, a Registered Respiratory Therapist and Certified Respiratory Educator, joined our Monthly Meet-Up to...

For years, PHA Canada has been working to ensure that the drug approval process in Canada meets the needs of our pulmonary hypertension...

The Pulmonary Hypertension Global Patient Survey  (PHGPS), the largest survey to date to explore the perspectives of patients with PH at...

Here are a few things that the Canadian PHriends Facebook group members found make their lives easier. Around the house Air conditioning...

Applications for the Canada Disability Benefit (CDB) open this week. If you're eligible for the Disability Tax Credit and you (and your...

On a beautiful June day filled with sunshine and warmth, our community gathered for a special fundraiser in honour of Andrew Barfoot....

What it is Yutrepia is a new drug: an inhaled form of treprostinil, a prostacyclin analogue. It was just approved by the Food and Drug...

The ZENITH study looked at some of the sickest pulmonary arterial hypertension (PAH) patients—those labelled as functional class 3...

"A person's mental health significantly influences how they experience pain and suffering associated with chronic disease. It's essential...

We asked Liss Cairns, Program Manager at Plan Institute, some questions about the Disability Tax Credit and the new Canada Disability...

Living with a rare disease can feel like walking an unmarked path—isolated, uncertain, and overlooked. For those with pulmonary arterial...

The 2025 BC Medication Coverage Report  is here—and it reveals serious gaps in access to life-saving medications across the province....

There has been significant progress in making sotatercept available to those who need it. Just two months after Health Canada approved it...

Tax season is upon us! The pulmonary hypertension community brought two tips to our attention. First, the usual disclaimer: we are not...

New Report Sheds Light on Pulmonary Hypertension in Canada Respiplus has just released a groundbreaking report, A Canadian Initiative:...

Many people know about Canada’s Disability Tax Credit, but did you know that there is also a non-refundable tax credit for caregivers? If...

"Imagine being told that a new treatment exists — one that could save your life or significantly improve it — but that you’ll have to...

The holiday season is the most critical fundraising period for charities, with many relying on year-end donations to sustain their work....

In an innovative new collaboration between Trillium Gift of Life Network (TGLN) and the provincial and federal governments, millions of...

As of December 1, the Ontario government has improved reimbursement amounts for people in Northern Ontario who need to travel for...

A webinar hosted by the Pulmonary Hypertension Knowledge Sharing Platform this week talked about a couple of studies on mental health in...

💜 RDSP Awareness Month is almost over , but it’s not too late to learn about the benefits of a Registered Disability Savings Plan (RDSP)...

PHA Canada is proud to announce our latest submission to the Patented Medicines Pricing Review Board (PMPRB)  this September. As the...

Merck has announced that WINREVAIR® (sotatercept) is now authorized for use in Canada in combination with standard pulmonary arterial...

A new investigation, "A Canadian Initiative: Exploring Adult Pulmonary Hypertension," highlights critical issues such as diagnostic...

We are pleased to announce that sotatercept, a new drug for patients diagnosed with pulmonary arterial hypertension (PAH), is now listed...

This article originally appeared in The Hills Times on May 6, 2024 Have you ever tried to fix something without the right tool? If you...

Tune in to the latest episode of the PHaware podcast, where Dr. Jason Weatherald, a pulmonologist at the University of Alberta, delves...

A recent report sheds light on the critical need for British Columbia to bolster its Public Drug Coverage. Over the past five years, BC...

Board member Joan Paulin and PHA Canada Ambassador Jennifer Bryson attended the Rare Disease Summit hosted by the Canadian Organization...

The US Food and Drug Administration (FDA) has granted approval for the medication sotatercept, a significant milestone in the treatment...

On June 22nd, 2023, a significant milestone was achieved as the federal government enacted Bill C-22, officially establishing the Canada...

Tax season is here! Before filing your taxes, determine which benefits you may be eligible for. Check out the article below to learn...

On this International Volunteer Day, I am reminded of the incredible support we receive from our community. From our Board of Directors...

Click here to watch Ella's interview on Winnipeg City News --------- After getting a second lease on life following a successful lung...

Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours survivors of the residential school system,...

Bill C-22, the Canada Disability Benefit Act, has become law, marking a significant milestone for people with disabilities in Canada....

This is a big year, marking 15 years of inspiration with PHA Canada. This week we are honoured to get to celebrate this milestone in...

The Pulmonary Hypertension Association of Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs...

There is a rapidly growing end-of-life or death doula movement across Canada. Over the last five years, there has been a significant...