top of page
Section Background High-Res.jpg
Section Background High-Res.jpg

RESEARCH

Medical Think Tank

Stay informed on the latest PH research with summaries from the 2023 National PH Medical Think Tank

The National PH Medical Think Tank convenes PH experts and other academic researchers for a half-day think tank focused on facilitating collaboration among PH clinicians and scientists, accompanied by a full day of scientific sessions sharing the latest in PH research from across Canada and beyond.

Sharing good quality research news with the PH community is a top priority for PHA Canada. Thank you to Dr. Sanjay Mehta (London Health Sciences Centre) for volunteering to “translate” research updates from this year’s meeting so that you can better understand some of the incredible PH research taking place in Canada. 

Canadian PH Registry (CPHR): Where We Are and Where We Are Going

Presented by Dr. John Swiston, MD, FRCPC, VGH Pulmonary Hypertension Clinic, Vancouver, BC

 

Background. A patient registry, such as CPHR, is an organized system to collect data on a specific group of patients and serves as a vital tool for clinical research. CPHR could help PHA Canada and the Canadian PH community better understand the nature of Canadian PH patients by finding out who is getting diagnosed, where they are in the country, and their treatment regimes, as well as capturing important real-world data on patients’ clinical status and outcomes.

​

Current status. CPHR already has data from more than 2,000 Canadian PH patients. These are largely WHO group 1 PAH and group 4 CTEPH patients from 13 Expert PH Centres, including 11 adult and two pediatric centres. 68% of enrolled PH patients are female, and most patients are aged 50 – 75. CPHR already supports Canadian PH research, including the publication of three research articles and six abstracts, and five ongoing studies using CPHR data. Most of these studies involve collaborative work across several Expert PH Centres. CPHR also permits Canadian PH researchers to collaborate globally, for example, through «PHederation,» a public-private partnership for PH scientific collaboration across a network of realworld data sources such as CPHR. CPHR also facilitates new projects and partnerships with corporate sponsors, which brings more research support.

 

Future. Funding from PHA Canada will support active efforts to capture data from patients in all 22 Canadian Expert PH Centres.

​

bottom of page