COMMUNITY
Podcasts
Looking to learn more about pulmonary hypertension (PH) through real stories, expert insights, and meaningful conversations? This page features a curated collection of podcasts covering a wide range of PH-related topics—from patient journeys and caregiver experiences to the latest in research, treatments, and advocacy.
Each episode offers a chance to hear from voices within the global PH community, including patients, healthcare professionals, and advocates working to raise awareness and improve care.
Browse, listen, and share—there’s something here for everyone navigating life with PH.
The Caregiver Podcast
In this heartfelt episode, host Dr. Mark Ropeleski speaks with Cynthia Neilson about the emotional and practical realities of raising a child with a rare heart-lung condition. From the early days at SickKids to navigating daily life with medical equipment, Cynthia shares her family’s journey with honesty, strength, and hope.
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Tune in to hear how she’s learned to find peace amid uncertainty—and how she’s helped empower her daughter, Clare, to become her own advocate.
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The Expand Podcast: Season 6: Pulmonary Arterial Hypertension
The eXpand Podcast, created by Respiplus, explores respiratory health through expert insight and lived experience. In Season 6, the focus turns to pulmonary arterial hypertension (PAH)—a rare, serious, and often misdiagnosed condition.
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This 3‑episode season features voices from the PH community, including Jamie Myrah, Executive Director of PHA Canada, alongside leading PH clinicians Dr. Sanjay Mehta and Dr. Nathan Brunner. Together, they discuss the realities of diagnosis, the impact of PAH on daily life, and why early recognition and access to care matter.
Sickboy Podcast
PHA Canada is proud to collaborate with the Sickboy Podcast (CBC) on a special episode of The Breakdown: “From Six Months to Tears of Joy.”
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This audio documentary traces PAH’s journey from a once-devastating diagnosis to a condition with new hope. Listeners will hear:
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Jane’s story of living with PAH in her twenties
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Dr. David Langleben on decades of progress in PH care
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Jamie Myrah on the urgent need for earlier diagnosis
The episode spotlights sotatercept, a groundbreaking therapy that targets PAH at its root cause.
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Made possible thanks to an educational grant from Merck.
Before I Go... Embracing the Journey of MAiD Podcasts
Before I Go is a heartfelt podcast by Gitxaala matriarch Marion Brown and her daughter Danielle Wilson Brown. Living with pulmonary hypertension, Marion shares her journey with MAiD and opens space for honest dialogue on Indigenous traditions, dignity, and end-of-life care.
PHAware Podcasts
PhAware was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical professionals, PHAware is dedicated to elevating their mission by making the public, news media, donors and investors #phaware of pulmonary hypertension.The podcast series "I'm aware that I'm rare" is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
