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Join date: Apr 18, 2024

Posts (25)

Dec 16, 20252 min
Travelling for the holidays?
Visiting family or friends out of town is one of the joys of the holiday season. If you’re living with pulmonary hypertension, travelling may take a bit more planning, but with the right preparation, it can still be safe, comfortable, and enjoyable. A little foresight can go a long way toward helping you focus on what really matters: spending time with the people you love. Before you head out, here are some important things to keep in mind: Nutrition:  Finding lower-sodium options while...

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Dec 5, 20251 min
Celebrating the Heart of Our Community: PHA Canada Volunteers
December 5th is International Volunteer Day , we pause to celebrate the incredible people who are the heartbeat of our community: our volunteers . Whether you're living with pulmonary hypertension (PH), supporting a loved one, or simply passionate about making a difference—your dedication, time, and compassion are what make PHA Canada’s work possible. From running support groups and organizing local events, to serving on committees and sharing your lived experience, every act of volunteerism...

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Nov 27, 20252 min
The CORD Fall Conference 2025
For the past two days, PHA Canada Board member Beth Slaunwhite and I were in Ottawa enjoying the Canadian Organization for Rare Disorders (CORD) conference "Co-Creating Canadian Rare". Pulmonary arterial hypertension and CTEPH are, of course, rare diseases, but there are so many others. Individually, each disease or disorder is rare, but collectively they're quite common: somewhere between one in ten and one in twelve Canadians has a rare disease. The first day dealt largely with the Rare...

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