For the past two days, PHA Canada Board member Beth Slaunwhite and I were in Ottawa enjoying the Canadian Organization for Rare Disorders (CORD) conference "Co-Creating Canadian Rare". Pulmonary arterial hypertension and CTEPH are, of course, rare diseases, but there are so many others. Individually, each disease or disorder is rare, but collectively they're quite common: somewhere between one in ten and one in twelve Canadians has a rare disease. The first day dealt largely with the Rare...

One way PHA Canada helps improve the diagnosis and management of pulmonary hypertension (PH) is by reaching out and collaborating with healthcare professionals (HCPs). HCPs play a key role in ensuring that PH is recognized and investigated promptly, so patients receive the appropriate care and treatment, regardless of the type of PH they have.   PHA Canada has built strong, long-term relationships with PH expert centres across Canada. These centres mainly treat people with Group 1 pulmonary...

“I definitely believe there’s significant value in the right heart cath at diagnosis. It’s known to be the gold standard for diagnosing pulmonary hypertension, providing the most accurate measurement of pulmonary artery pressures to determine if a patient has pulmonary hypertension.”
-- Nicole Dempsey For people living with pulmonary hypertension, right heart catheterizations are a necessary chapter in everyone's individual story. What do patients value about right heart catheterizations?...