Building a Better Future for Rare Disease Patients in Canada

When it comes to rare diseases, Canada’s healthcare and research systems weren’t built to keep up. That’s where the Canadian Rare Disease Network (CRDN) steps in—a new initiative working to change the rare disease journey for millions across the country.

With over 7,000 known rare diseases affecting more than 3 million people in Canada, patients and families often face long diagnostic delays, limited treatment options, and fragmented care. CRDN was launched in 2024 to connect care, research, and lived experience—ensuring no patient is left behind simply because their condition is rare.

Built by and for the rare disease community, CRDN is not just another organization. It’s a cross-country, cross-sector network uniting researchers, clinicians, patient organizations, and families under one vision: innovative, connected care that helps every person with a rare disease live their full potential.

💡 Want to learn more about CRDN and how it’s driving change through national collaboration, equitable diagnostics, and integrated support?

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