June 29 is World Scleroderma Day
On June 29, along with our partner organization Scleroderma Canada and many others, we mark World Scleroderma Day.
Scleroderma is a progressive autoimmune disorder that causes skin and internal organs to harden and thicken. It can cause scarring in the lungs and in the arteries of the lungs, affecting oxygen absorption. Each year about 1% of people with scleroderma develop pulmonary arterial hypertension, so there are many people with both scleroderma and pulmonary hypertension.
As often happens with pulmonary hypertension,
“Scleroderma has an additional challenge of being characterised by a wide range of signs and symptoms that can vary from patient to patient suffering from the same disease with many fairly common symptoms which can hide the underlying disease, which leads to misdiagnosis as knowledge within the medical and science sectors is still lacking.” (Scleroderma Society UK)
Living with both scleroderma and pulmonary hypertension can be challenging, but hearing from others can provide valuable information and reassurance. PHA Canada talked to patient Jeannie Tom to find out more about her experience with both scleroderma and pulmonary hypertension:
Jane Macleod is another patient who has shared her story about living with scleroderma and pulmonary arterial hypertension. Read her story here, or listen to her speak about her experiences on the PHAware podcast.
Because pulmonary hypertension can develop in association with scleroderma, people with scleroderma should get screened for pulmonary hypertension every year. Early detection can help people receive optimal care.
On World Scleroderma Day, we stand alongside everyone affected by scleroderma and pulmonary hypertension.
World Scleroderma Day is an important opportunity to raise awareness and support those affected. A screen moiré remover can help keep educational visuals and awareness campaign images clear.
online games offer a fun and exciting way to relax, challenge yourself, and enjoy countless adventures. With so many games to explore, there is always something new and entertaining to try!
It's inspiring to see awareness being raised for scleroderma and its connection to pulmonary hypertension. As someone who values clear, accurate health communication, I appreciate how stories like Jeannie Tom’s and Jane Macleod’s help demystify complex conditions. In a similar way, just as important details can be hidden in symptoms, video content for patient education or advocacy can also benefit from clarity—like removing distracting backgrounds to focus on the message. Tools like https://swapbackdrop.com/ help creators repurpose videos efficiently, whether for awareness campaigns or support resources.
This was genuinely an interesting read, and I liked that the information stayed easy to understand throughout. The coreball game starts off pretty simple, but the center slowly becomes crowded, leaving smaller gaps where you need to carefully place each new ball.
A colleague mentioned this platform during a casual conversation about online games popular in Canada That same evening, I visited LuckNation Casino to see if it matched what he described. I appreciated how easy it was to get started without overthinking things. My first attempts weren’t very successful, and I nearly gave up after a few losses. But I decided to continue a bit longer, and that changed everything. I managed to hit a solid win and ended the session feeling satisfied. Now I return from time to time when I’m in the mood to play.