COMMUNITY
Your Stories
The Canadian PH community is made up of many exceptional individuals: patients, caregivers, healthcare providers, researchers, and supporters who individually and collectively refuse to give up in the face of the many challenges brought on by this disease. These are their stories.
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Click here if you are interested in sharing your story about your Life In Purple.
Sickboy Podcast
PHA Canada is proud to collaborate with the Sickboy Podcast (CBC) on a special episode of The Breakdown: “From Six Months to Tears of Joy.”
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This audio documentary traces PAH’s journey from a once-devastating diagnosis to a condition with new hope. Listeners will hear:
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Jane’s story of living with PAH in her twenties
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Dr. David Langleben on decades of progress in PH care
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Jamie Myrah on the urgent need for earlier diagnosis
The episode spotlights sotatercept, a groundbreaking therapy that targets PAH at its root cause.
Before I Go... Embracing the Journey of MAiD Podcasts
Before I Go is a heartfelt podcast by Gitxaala matriarch Marion Brown and her daughter Danielle Wilson Brown. Living with pulmonary hypertension, Marion shares her journey with MAiD and opens space for honest dialogue on Indigenous traditions, dignity, and end-of-life care.
PHAware Podcasts
PhAware was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical professionals, PHAware is dedicated to elevating their mission by making the public, news media, donors and investors #phaware of pulmonary hypertension.The podcast series "I'm aware that I'm rare" is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
