Blog 3/6 - Easter Seals When a family welcomes a child,  many will say that "it takes a village"; I would say the same when someone...

Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...

Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick.   This year we received an opportunity to...

I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....

We are pleased to announce that sotatercept, a new drug for patients diagnosed with pulmonary arterial hypertension (PAH), is now listed...

New Study Released for World Pulmonary Hypertension Day Shows Huge Impact of Rare and Complex Lung Disease on Canadians Pulmonary...

This article originally appeared in The Hills Times on May 6, 2024 Have you ever tried to fix something without the right tool? If you...

Tune in to the latest episode of the PHaware podcast, where Dr. Jason Weatherald, a pulmonologist at the University of Alberta, delves...

A recent report sheds light on the critical need for British Columbia to bolster its Public Drug Coverage. Over the past five years, BC...

Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...

Board member Joan Paulin and PHA Canada Ambassador Jennifer Bryson attended the Rare Disease Summit hosted by the Canadian Organization...

The US Food and Drug Administration (FDA) has granted approval for the medication sotatercept, a significant milestone in the treatment...

On June 22nd, 2023, a significant milestone was achieved as the federal government enacted Bill C-22, officially establishing the Canada...

Tax season is here! Before filing your taxes, determine which benefits you may be eligible for. Check out the article below to learn...

Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...

Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....

Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...

As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...

I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...

On this International Volunteer Day, I am reminded of the incredible support we receive from our community. From our Board of Directors...