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Pulmonary Hypertension Association of Canada Applauds Canada’s Drug Agency Recommendation for Public Funding of Winrevair™ (sotatercept)
Date: November 7, 2024 Location: Vancouver, BC Â The Pulmonary Hypertension Association of Canada (PHA Canada) is thrilled to announce...
PHA Canada
Nov 6, 20243 min read
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Mental health in PAH
A webinar hosted by the Pulmonary Hypertension Knowledge Sharing Platform this week talked about a couple of studies on mental health in...
PHA Canada
Oct 31, 20241 min read
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Interview with Liss Cairns from Plan Institute - RDSP Awareness Month
💜 RDSP Awareness Month is almost over , but it’s not too late to learn about the benefits of a Registered Disability Savings Plan (RDSP)...
PHA Canada
Oct 28, 20241 min read
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Update: Canadian Drug Agency Funding Success for Pulmonary Hypertension Research
Great news for the Pulmonary Hypertension (PH) community! Through the Canadian Drug Agency's (CDA) funding initiative for rare diseases,...
PHA Canada
Oct 24, 20241 min read
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Rural and urban PH patients receive equivalent care
As most PH clinics are in large cities, PH patients living in rural or remote areas and who must travel long distances to their clinic...
PHA Canada
Oct 24, 20241 min read
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PHA Canada Advocates for Fair Access: September Submission to PMPRB
PHA Canada is proud to announce our latest submission to the Patented Medicines Pricing Review Board (PMPRB) Â this September. As the...
PHA Canada
Sep 11, 20241 min read
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Sotatercept (WINREVAIR®) Authorized in Canada for PAH Treatment
Merck has announced that WINREVAIR® (sotatercept) is now authorized for use in Canada in combination with standard pulmonary arterial...
PHA Canada
Sep 5, 20241 min read
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 4/6
Blog 4/6 - Getting there Guillaume and I love road-tripping! Ever since we met in 2001, we have frequently hit the road in search of...
Angèle Belliveau, Patient
Jul 22, 20244 min read
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Uncovering Major Inequities in PH Care Across Canada
A new investigation, "A Canadian Initiative: Exploring Adult Pulmonary Hypertension," highlights critical issues such as diagnostic...
PHA Canada
Jul 22, 20241 min read
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 3/6
Blog 3/6 - Easter Seals When a family welcomes a child, many will say that "it takes a village"; I would say the same when someone...
Angèle Belliveau, Patient
Jul 18, 20243 min read
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 2/6
Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...
Angèle Belliveau, Patient
Jul 10, 20243 min read
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 1/6
Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick. Â This year we received an opportunity to...
Angèle Belliveau, Patient
Jul 2, 20241 min read
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How Timely Diagnosis Changed My Life
I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....
Mary Senkiw, Patient, Winnipeg, MB
Jun 19, 20242 min read
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Sotatercept is now listed on Health Canada's website
We are pleased to announce that sotatercept, a new drug for patients diagnosed with pulmonary arterial hypertension (PAH), is now listed...
PHA Canada
May 13, 20241 min read
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New Study Released for World PH Day Shows Huge Impact of Rare and Complex Lung Disease on Canadians
New Study Released for World Pulmonary Hypertension Day Shows Huge Impact of Rare and Complex Lung Disease on Canadians Pulmonary...
PHA Canada
May 6, 20244 min read
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Doctors need the right tools to treat patients well, especially for rare diseases
This article originally appeared in The Hills Times on May 6, 2024 Have you ever tried to fix something without the right tool? If you...
Dr. Sanjay Mehta
May 5, 20243 min read
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Dr. Jason Weatherald Discusses the Burden of PAH on the PHaware Podcast
Tune in to the latest episode of the PHaware podcast, where Dr. Jason Weatherald, a pulmonologist at the University of Alberta, delves...
PHA Canada
May 5, 20241 min read
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Disparities in BC's Public Drug Plan
A recent report sheds light on the critical need for British Columbia to bolster its Public Drug Coverage. Over the past five years, BC...
PHA Canada
Apr 21, 20241 min read
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Life's Twists and Turns: My Story of Living with PH for Over 40 Years
Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...
Suzanne Martin Wagnell, Patient, Larder Lake, ON
Apr 17, 20244 min read
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Rare Disease Day Summit Recap: Advocacy, Unity, and the Fight for Equitable Access
Board member Joan Paulin and PHA Canada Ambassador Jennifer Bryson attended the Rare Disease Summit hosted by the Canadian Organization...
Joan Paulin, Caregiver
Apr 3, 20243 min read
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