Angel Ouellet One day when I was six years old, I saw a favourite teacher at the end of the corridor at school and ran to give them a...

Rose Jardim When I was 50 years old, I cut myself while shaving my legs. And then the cut just didn’t heal. It developed into a deep...

Tarya Morel Looking back, I’ve had difficulties with shortness of breath for as long as I can remember, but it never really occurred to...

Blog 4/6 - Getting there Guillaume and I love road-tripping! Ever since we met in 2001, we have frequently hit the road in search of...

Blog 3/6 - Easter Seals When a family welcomes a child,  many will say that "it takes a village"; I would say the same when someone...

Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...

Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick. This year we received an opportunity to fulfill...

I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....

Phaware was founded by a group of pulmonary hypertension awareness activists. Comprised of patients, caregivers, and medical...

Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...

Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...

Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....

Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...

As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...

I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...

Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...

I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...

My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...

In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...

I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...