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Left-Sided Heart Disease & Pulmonary Hypertension
I was diagnosed with Pulmonary Hypertension in 2019. After tests & procedures, it was determined I likely had group 2 and 3 PH. Group 2...
Dawn Clarke - patient
2 hours ago3 min read
6 views
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New Faces, Lasting Connections: My First PH Conference Experience
The 2024 Pulmonary Hypertension Patient Symposium in Calgary was my first rodeo, as it were. I started dating my partner Tarya in the...
Simon Goring
Feb 193 min read
115 views
1 comment


Patient Voice: Angel's Story
Angel Ouellet One day when I was six years old, I saw a favourite teacher at the end of the corridor at school and ran to give them a...
Patient Voice
Jan 162 min read
27 views
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Patient Voice: Rose's Story
Rose Jardim When I was 50 years old, I cut myself while shaving my legs. And then the cut just didn’t heal. It developed into a deep...
Patient Voice
Jan 162 min read
19 views
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Patient Voice: Tarya's Story
Tarya Morel Looking back, I’ve had difficulties with shortness of breath for as long as I can remember, but it never really occurred to...
Patient Voice
Jan 162 min read
32 views
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 4/6
Blog 4/6 - Getting there Guillaume and I love road-tripping! Ever since we met in 2001, we have frequently hit the road in search of...
Angèle Belliveau, Patient
Jul 22, 20244 min read
211 views
7 comments


Traveling with PH: Angele's Family Adventures Across Canada - Blog 3/6
Blog 3/6 - Easter Seals When a family welcomes a child, many will say that "it takes a village"; I would say the same when someone...
Angèle Belliveau, Patient
Jul 18, 20243 min read
193 views
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 2/6
Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...
Angèle Belliveau, Patient
Jul 10, 20243 min read
79 views
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Traveling with PH: Angele's Family Adventures Across Canada - Blog 1/6
Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick. This year we received an opportunity to fulfill...
Angèle Belliveau, Patient
Jul 2, 20241 min read
40 views
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How Timely Diagnosis Changed My Life
I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....
Mary Senkiw, Patient, Winnipeg, MB
Jun 19, 20242 min read
33 views
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Life's Twists and Turns: My Story of Living with PH for Over 40 Years
Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...
Suzanne Martin Wagnell, Patient, Larder Lake, ON
Apr 17, 20244 min read
25 views
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Make-A-Wish trip to Disney World
Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...
Selena McAlpine
Mar 7, 20242 min read
8 views
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Managing life with multiple rare diseases
Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....
Jas James, Patient, Cobble Hill, BC
Feb 28, 20242 min read
14 views
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Living with Scleroderma and Pulmonary Arterial Hypertension: A Journey of Rare Resilience
Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...
Isabelle Lynch, Patient, Laval, QC
Feb 28, 20244 min read
18 views
0 comments


Recognizing Black History Month
As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...
Brin Marks, Patient, Edmonton, AB
Feb 26, 20242 min read
1 view
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Third Time's a Charm: Finding My Footing at Canada’s Rare Disease Conference
I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...
Jennifer Bryson, Patient
Jan 29, 20243 min read
1 view
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CTV News - Ottawa school teacher living with rare Pulmonary Arterial Hypertension
Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...
CTV News / Jo-Anne Mainwood, Patient, Ottawa
Nov 24, 20232 min read
24 views
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Jane's Journey: Overcoming PAH and Scleroderma
I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...
Jane Macleod, Patient
Oct 29, 20233 min read
11 views
0 comments


Living with Hope: My PAH Journey and the Power of Perseverance
My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...
Terri Hamm, Patient
Oct 26, 20232 min read
6 views
0 comments


Surviving the Storm: My Journey with Pulmonary Hypertension and Transplantation
In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...
Ella MacLeod, Patient
Oct 26, 20232 min read
2 views
0 comments
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