Good news: treatments have significantly increased five-year survival for CTEPH
Since the 1980s, treatment options for patients with chronic thromboembolic pulmonary hypertension (CTEPH) have increased. This study looked at whether five-year survival for CTEPH patients also improved.
The researchers looked at 834 CTEPH patients, dividing them into early (1980s and 1990s), middle (2000s), and late (2010-2023) eras.
Early era patients received CTEPH therapy only 35% of the time, and 68% survived for five years.
Middle era patients received therapy 64% of the time. 85% survived for five years.
Late era patients received therapy 97% of the time, and 93% survived for five years.
Clearly, CTEPH therapies and the long-term prognosis of patients with CTEPH have improved substantially in recent decades.
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Great to see survival rates improving so much over the decades! Reminds me of super mario bros. japan, where each era feels like a new level.
That jump from 35% receiving therapy in the early era to 97% recently, with five-year survival going from 68% to 93%, really stuck with me. My uncle was diagnosed late, and just getting him to a specialized CTEPH team changed everything. Keeping a simple symptom and medication log helped us spot changes between visits and ask better questions. It makes me wonder how much survival gains now depend on access, not just new treatments.
Awesome as well as helpful keep it up
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