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PHA Canada
4 days ago1 min read
HYPERION sotatercept study has positive results, stops early
The HYPERION study examined whether adding sotatercept to other therapies for recently diagnosed patients with pulmonary arterial...
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PHA Canada
Feb 41 min read
Treprostinil benefits PAH patients with cardiovascular issues
Patients with pulmonary arterial hypertension (PAH) often also have cardiovascular issues such as diabetes or heart disease. A new...
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PHA Canada
Jan 281 min read
Op-ed: Speed up patient access to life-saving medications
"Imagine being told that a new treatment exists — one that could save your life or significantly improve it — but that you’ll have to...
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Patient Voice
Jan 162 min read
Patient Voice: Angel's Story
Angel Ouellet One day when I was six years old, I saw a favourite teacher at the end of the corridor at school and ran to give them a...
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Patient Voice
Jan 162 min read
Patient Voice: Rose's Story
Rose Jardim When I was 50 years old, I cut myself while shaving my legs. And then the cut just didn’t heal. It developed into a deep...
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Patient Voice
Jan 162 min read
Patient Voice: Tarya's Story
Tarya Morel Looking back, I’ve had difficulties with shortness of breath for as long as I can remember, but it never really occurred to...
16 views0 comments
PHA Canada
Dec 18, 20241 min read
Sotatercept safe and effective across cardiac index groups
Cardiac index (CI) assesses the output of someone's heart based on their size. It measures heart function relative to the person's size...
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PHA Canada
Dec 17, 20241 min read
Take Action to Support Canadian Charities
The holiday season is the most critical fundraising period for charities, with many relying on year-end donations to sustain their work....
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PHA Canada
Dec 10, 20241 min read
A Simple Step to Save Lives: Ontario's Tax Return Initiative for Organ Donation
In an innovative new collaboration between Trillium Gift of Life Network (TGLN) and the provincial and federal governments, millions of...
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PHA Canada
Dec 6, 20242 min read
Pulmonary Hypertension Association of Canada Urges Québec's Minister of Health to Join pCPA Negotiations for Sotatercept
INESSS recognizes sotatercept's therapeutic value but recommends against public funding Vancouver BC (5 December 2024) -- The Pulmonary...
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PHA Canada
Dec 4, 20241 min read
Improved reimbursements for PH patients in Northern Ontario
As of December 1, the Ontario government has improved reimbursement amounts for people in Northern Ontario who need to travel for...
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PHA Canada
Nov 26, 20241 min read
ZENITH study shows sotatercept is effective for PAH patients at high risk of mortality
The ZENITH study examined whether adding sotatercept to people's ongoing therapies reduced the risk of death, lung transplantation, or...
25 views0 comments
PHA Canada
Nov 6, 20243 min read
Pulmonary Hypertension Association of Canada Applauds Canada’s Drug Agency Recommendation for Public Funding of Winrevair™ (sotatercept)
Date: November 7, 2024 Location: Vancouver, BC Â The Pulmonary Hypertension Association of Canada (PHA Canada) is thrilled to announce...
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PHA Canada
Oct 31, 20241 min read
Mental health in PAH
A webinar hosted by the Pulmonary Hypertension Knowledge Sharing Platform this week talked about a couple of studies on mental health in...
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PHA Canada
Oct 28, 20241 min read
Interview with Liss Cairns from Plan Institute - RDSP Awareness Month
💜 RDSP Awareness Month is almost over , but it’s not too late to learn about the benefits of a Registered Disability Savings Plan (RDSP)...
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PHA Canada
Oct 24, 20241 min read
Update: Canadian Drug Agency Funding Success for Pulmonary Hypertension Research
Great news for the Pulmonary Hypertension (PH) community! Through the Canadian Drug Agency's (CDA) funding initiative for rare diseases,...
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PHA Canada
Oct 24, 20241 min read
Rural and urban PH patients receive equivalent care
As most PH clinics are in large cities, PH patients living in rural or remote areas and who must travel long distances to their clinic...
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PHA Canada
Sep 11, 20241 min read
PHA Canada Advocates for Fair Access: September Submission to PMPRB
PHA Canada is proud to announce our latest submission to the Patented Medicines Pricing Review Board (PMPRB) Â this September. As the...
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PHA Canada
Sep 5, 20241 min read
Sotatercept (WINREVAIR®) Authorized in Canada for PAH Treatment
Merck has announced that WINREVAIR® (sotatercept) is now authorized for use in Canada in combination with standard pulmonary arterial...
632 views0 comments


Angèle Belliveau, Patient
Jul 22, 20244 min read
Traveling with PH: Angele's Family Adventures Across Canada - Blog 4/6
Blog 4/6 - Getting there Guillaume and I love road-tripping! Ever since we met in 2001, we have frequently hit the road in search of...
185 views3 comments
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