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Travelling for the holidays?
Visiting family or friends out of town is one of the joys of the holiday season. If you’re living with pulmonary hypertension, travelling may take a bit more planning, but with the right preparation, it can still be safe, comfortable, and enjoyable. A little foresight can go a long way toward helping you focus on what really matters: spending time with the people you love. Before you head out, here are some important things to keep in mind: Nutrition: Finding lower-sodium op

PHA Canada
Dec 15, 20252 min read
Air pollution may worsen PAH
Air pollution is known to be bad for heart and lung diseases, but this study looked at whether it affected pulmonary arterial hypertension (PAH) in particular. They followed a cohort of patients for about three years and found that not only does exposure to high levels of air pollution increase the risk of death or lung transplantation for PAH patients, it made their pulmonary hypertension worse. People who lived in highly polluted areas were more likely to be categorized as.
Robyn Kalda
Dec 8, 20251 min read


Celebrating the Heart of Our Community: PHA Canada Volunteers
December 5th is International Volunteer Day , we pause to celebrate the incredible people who are the heartbeat of our community: our volunteers . Whether you're living with pulmonary hypertension (PH), supporting a loved one, or simply passionate about making a difference—your dedication, time, and compassion are what make PHA Canada’s work possible. From running support groups and organizing local events, to serving on committees and sharing your lived experience, every act

PHA Canada
Dec 4, 20251 min read


The CORD Fall Conference 2025
For the past two days, PHA Canada Board member Beth Slaunwhite and I were in Ottawa enjoying the Canadian Organization for Rare Disorders (CORD) conference "Co-Creating Canadian Rare". Pulmonary arterial hypertension and CTEPH are, of course, rare diseases, but there are so many others. Individually, each disease or disorder is rare, but collectively they're quite common: somewhere between one in ten and one in twelve Canadians has a rare disease. The first day dealt largely

PHA Canada
Nov 27, 20252 min read


Improving PH Diagnosis and Care One Conversation at a Time
One way PHA Canada helps improve the diagnosis and management of pulmonary hypertension (PH) is by reaching out and collaborating with healthcare professionals (HCPs). HCPs play a key role in ensuring that PH is recognized and investigated promptly, so patients receive the appropriate care and treatment, regardless of the type of PH they have. PHA Canada has built strong, long-term relationships with PH expert centres across Canada. These centres mainly treat people with Gr

PHA Canada
Nov 24, 20252 min read


A Tag Team of Rare Disease Education by Kate Salonga
On Saturday, October 25th, I attended the Scleroderma Association of BC’s 2025 AGM and conference. For those unfamiliar - like myself a few weeks ago - scleroderma and pulmonary hypertension have a very interesting relationship, which is why PHA Canada usually has a booth set up at this annual meeting. Scleroderma is an autoimmune disease that causes hardening and/or thickening of the skin and internal organs. Sound familiar? That’s because scleroderma patients are at risk of
Kaitlyn Salonga, Patient
Nov 24, 20252 min read
Kettlebell exercise training was safe and effective for PAH patients
A small study of patients with stable pulmonary arterial hypertension (PAH) were randomly assigned to either no exercise program or an exercise program using kettlebells three days per week for 8 weeks. The kettlebell group had improved functional capacity, quality of life, and physical activity level, and reduced fatigue, dyspnea, anxiety and depression. Read the Respiratory Medicine article
Robyn Kalda
Nov 24, 20251 min read


Patients talk about right heart catheterizations
“I definitely believe there’s significant value in the right heart cath at diagnosis. It’s known to be the gold standard for diagnosing pulmonary hypertension, providing the most accurate measurement of pulmonary artery pressures to determine if a patient has pulmonary hypertension.” -- Nicole Dempsey For people living with pulmonary hypertension, right heart catheterizations are a necessary chapter in everyone's individual story. What do patients value about right heart cat

PHA Canada
Nov 21, 20251 min read
pCPA Reaches Pricing Deal for Winrevair™, Bringing Breakthrough Rare Disease Treatment Closer to Patients
VANCOUVER, BC (Nov. 20, 2025) The Pulmonary Hypertension Association of Canada (PHA Canada) is delighted that the pan-Canadian Pharmaceutical Alliance (pCPA) has successfully concluded negotiations on behalf of public drug payers for the price of Winrevair™ (sotatercept), a breakthrough treatment option for pulmonary arterial hypertension (PAH), a serious, complex, and potentially fatal rare lung disease. “This is great news for PAH patients. There is still a lot of work to d

PHA Canada
Nov 20, 20253 min read


Phase 2 clinical trial of sotatercept for Group 2 PH succeeds
Pulmonary hypertension (PH) due to heart failure -- Group 2 PH -- has, until now, been treated by treating the underlying heart failure. However, a recent Phase 2 clinical trial, called CADENCE, tried treating PH due to heart failure with preserved ejection fraction (HFpEF) with sotatercept. Phase 2 trials are small trials which look at the safety of a drug and at whether it seems to work. Full data have not been published yet, but CADENCE successfully met its primary endpoin

PHA Canada
Nov 19, 20251 min read


November is also Financial Literacy Month
November is Pulmonary Hypertension Awareness Month, but did you know that it’s also Financial Literacy Month in Canada? The Financial Consumer Agency of Canada – set up to protect consumers of financial products and services – is encouraging everyone to “Talk Money” this month. They’re hoping to help break down the stigma around financial discussions. PHA Canada has resources to help with financial literacy and financial assistance, too: Finance and PH resource list , detai

PHA Canada
Nov 13, 20251 min read
Prostacyclin analogues protect against age-related macular degeneration
A study found that people taking infused prostacyclin analogues for pulmonary hypertension had a significantly lower risk of developing age-related macular degeneration, an eye problem that causes vision loss in older adults. The protection was robust -- patients using systemic prostacyclin analogues were about 60% less likely to develop several types of age-related macular degeneration -- and the effect was sustained over time. Read the Eye article
Robyn Kalda
Nov 10, 20251 min read


From Clots to Clarity: My Journey with CTEPH
In April 2016, I found a lump on my leg, and like most adults, I ignored it for a couple of weeks. After seeing doctors, I did 6 weeks of oral antibiotics, 6 days of IV antibiotics, and 2 biopsies. They decided I needed to see a dermatologist. By the time I saw a dermatologist, the lump was gone, but he had an idea of what might have caused it, so he sent me for a chest X-ray. The X-ray showed an enlarged pulmonary trunk, and he sent me to a Cardiologist. The Cardiologist ord
Maureen Harper
Nov 7, 20252 min read


New Podcast Episode: Pulmonary Arterial Hypertension: Why Is This Deadly Illness Still Misdiagnosed?
Pulmonary arterial hypertension (PAH) is a life-altering condition—but far too often, it remains underdiagnosed, misunderstood, and mismanaged. In a new episode of the eXpand podcast by Respiplus (Season 6), our Executive Director, Jamie Myrah , joins host Dr. Jean Bourbeau to explore the complexities of PAH and its impact on patients across Canada. With nearly a decade of leadership at PHA Canada, Jamie brings the front-line perspective of patients, families, and care te

PHA Canada
Nov 6, 20251 min read


Working Caregivers: Could you use 10 hours of respite?
Through the Respite for All Pilot Project, led by SE Health and Greenshield Cares, caregivers across Canada who are working at least 30 hours per week can apply for 10 hours of free, home-based respite care. For this pilot program, respite care includes personal support care, help with activities of daily living, light home support, and companionship, but not clinical or regulated health services (nursing, providing injections, managing medical equipment, etc.) The pilot runs

PHA Canada
Nov 5, 20251 min read


Need a pulmonary function test in rural Alberta? Lung Health Check can help
Alberta has launched Lung Health Check, a new program using vans to bring pulmonary function tests to rural, remote, and Indigenous communities in Alberta. Patients won't need to travel long distances for pulmonary function tests -- the vans will bring the tests to them. This will save patients money as well as time, and will make ongoing pulmonary function monitoring easier. Patients can be as young as five years old, but the vans are not wheelchair-accessible so they must b

PHA Canada
Nov 4, 20251 min read
PHA Canada Launches Pulmonary Hypertension Awareness Month: United in Action to Ease the Pressure
November marks Pulmonary Hypertension (PH) Awareness Month , and the Pulmonary Hypertension Association of Canada (PHA Canada) is calling on Canadians to take action to raise awareness, advocate for access to a life-changing treatment, and fundraise in support of the PH community. This year’s theme, “Heart Under Pressure,” shines a spotlight on the physical, emotional, and systemic pressures that come with living with PH—a progressive and potentially fatal disease affecting

PHA Canada
Oct 31, 20252 min read


The science of PAH marches on: the SAPPHIRE trial
As we know, pulmonary arterial hypertension patients' lungs don't make enough nitric oxide, which is a vasodilator. But what if patients were given infusions of cells that were altered to produce blood vessel lining cells that would produce more nitric oxide in the lungs? Would it be a safe and effective treatment? The SAPPHIRE trial intended to find out. Participants randomly received either a placebo or an infusion of cells once a month for four months for a total of 80 mil

PHA Canada
Oct 28, 20252 min read
Inhaled nitric oxide in the first week of life helps the eyes of babies with PPHN
For very preterm babies, inhaled nitric oxide in the first week of life seems to help both persistent pulmonary hypertension of the newborn (PPHN) and retinopathy. After the first week, though, inhaled nitric oxide wasn't associated with better outcomes. Inhaled nitric oxide could be reframed as multi-organ protection for very premature babies with PPHN. Read the Nature article
Robyn Kalda
Oct 27, 20251 min read


Looking Back to Move Forward: The History of PH Care, Community, and Research in Canada
“This article captures the history and excellence of Canadian contributions to the field of pulmonary hypertension” Published in the Canadian Journal of Respiratory, Critical Care, and Sleep Medicine in October 2025, the comprehensive paper History of Respiratory Medicine in Canada: Pulmonary hypertension was clearly a labour of love. Authors Dr. Sanjay Mehta and Dr. Namisha Singh, with contributions from Jamie Myrah and Dr. Robert D. Levy, took two years to write it. Settl

PHA Canada
Oct 23, 20252 min read
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