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Living with Scleroderma and Pulmonary Arterial Hypertension: A Journey of Rare Resilience
Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...
Isabelle Lynch, Patient, Laval, QC
Feb 28, 20244 min read


Recognizing Black History Month
As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...
Brin Marks, Patient, Edmonton, AB
Feb 26, 20242 min read


Third Time's a Charm: Finding My Footing at Canada’s Rare Disease Conference
I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...
Jennifer Bryson, Patient
Jan 29, 20243 min read


The value of volunteers
On this International Volunteer Day, I am reminded of the incredible support we receive from our community. From our Board of Directors...
Darren Fisher, Advocacy, Manager, Community & Stakeholder Engagement
Dec 4, 20231 min read


CTV News - Ottawa school teacher living with rare Pulmonary Arterial Hypertension
Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...
CTV News / Jo-Anne Mainwood, Patient, Ottawa
Nov 24, 20232 min read
Winnipeg City News - Raising Awareness for an incurable lung disease
Click here to watch Ella's interview on Winnipeg City News --------- After getting a second lease on life following a successful lung...
PHA Canada
Nov 13, 20231 min read


Jane's Journey: Overcoming PAH and Scleroderma
I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...
Jane Macleod, Patient
Oct 29, 20233 min read


Living with Hope: My PAH Journey and the Power of Perseverance
My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...
Terri Hamm, Patient
Oct 26, 20232 min read


Surviving the Storm: My Journey with Pulmonary Hypertension and Transplantation
In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...
Ella MacLeod, Patient
Oct 26, 20232 min read


Getting the Most of Each Day
I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...
Carolyn Mathur, Patient
Oct 25, 20232 min read


A testament to the strength and resilience of the human spirit
In 2016, I was an active 32-year-old. My boyfriend and I were trying to have a baby, and pulmonary hypertension, a disease I had never...
Lea George, Patient
Oct 24, 20235 min read
The Path to Reconciliation
Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours survivors of the residential school system,...
PHA Canada
Sep 27, 20232 min read


Ready, Set, Let’s Go!
Having lived with PAH for over 12 years, I vowed never to let it control my life. Our family loves to travel, and I was not about to hold...
Marion Roth, Patient
Aug 17, 20233 min read


One Day, One Breath at a Time: Surviving Adversity
The first time I heard the words, "I think you have Scleroderma and Pulmonary Arterial Hypertension" was in January of 2012 was from my...
Jeannette MacKeen, Patient
Jun 28, 20233 min read


Canada Disability Benefit Act: Advancing Financial Independence for Individuals with Disabilities
Bill C-22, the Canada Disability Benefit Act, has become law, marking a significant milestone for people with disabilities in Canada....
PHA Canada
Jun 28, 20231 min read


Patients at the Boardroom Table: Dr. Sanjay Mehta Interviews Retiring Board Chair Nicole Dempsey
This is a big year, marking 15 years of inspiration with PHA Canada. This week we are honoured to get to celebrate this milestone in...
Nicole Dempsey, Patient
Jun 4, 20231 min read


Adding My Voice as a Parent Caregiver to PHA Canada’s Board of Directors
I applied to join the PHA Canada Board of Directors in 2018 because I wanted to give back to the PH community and contribute towards...
Ed Rathonyi, Caregiver
May 30, 20232 min read


Sonya: Twenty Years and Counting…
Twenty years ago, I first heard the words pulmonary hypertension. An emergency CT scan sent me to the hospital. I was in congestive heart...
Sonya Collins, Patient
May 18, 20232 min read


Born from a Vision: Why I Joined the Other Founders to Start PHA Canada.
15 years. Wow! Has it been that long since the small group of us got together with a vision of starting a national organization in...
Sharon Proudfoot, Patient
May 15, 20232 min read


Patient Voice: Emily's story
Emily's story is featured by Patient Voice * “I was working as a litigator in Toronto when I was diagnosed with chronic thromboembolic...
Emily, Patient
May 2, 20232 min read
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