Focus Group on Clinical Trials for Rare Diseases
Are you a young person or caregiver with experience navigating life with a rare disease? Your insights could help improve how clinical trials are designed and delivered in the future. The University of Ottawa is conducting a national focus group study—and they want to hear from you.
Researchers at the University of Ottawa are inviting children, youth, and caregivers affected by rare diseases to participate in a one-time, 60-minute virtual focus group to discuss clinical trial experiences. The study focuses on “decentralized trials”—research studies designed to bring opportunities closer to participants' homes, making involvement easier and more accessible.
You don’t need any prior knowledge of clinical trials to participate—just a willingness to share your experiences and ideas. If selected, you’ll receive a $50 gift card as a thank-you for your time.
Participation is open to people across Canada, and the research team is looking for a diverse group of voices.