top of page
PHA Canada Advocates for Fair Access: September Submission to PMPRB
PHA Canada is proud to announce our latest submission to the Patented Medicines Pricing Review Board (PMPRB) this September. As the...
PHA Canada
Sep 11, 20241 min read
Sotatercept (WINREVAIR®) Authorized in Canada for PAH Treatment
Merck has announced that WINREVAIR® (sotatercept) is now authorized for use in Canada in combination with standard pulmonary arterial...
PHA Canada
Sep 5, 20241 min read


Traveling with PH: Angele's Family Adventures Across Canada - Blog 4/6
Blog 4/6 - Getting there Guillaume and I love road-tripping! Ever since we met in 2001, we have frequently hit the road in search of...
Angèle Belliveau, Patient
Jul 22, 20244 min read


Uncovering Major Inequities in PH Care Across Canada
A new investigation, "A Canadian Initiative: Exploring Adult Pulmonary Hypertension," highlights critical issues such as diagnostic...
PHA Canada
Jul 22, 20241 min read


Traveling with PH: Angele's Family Adventures Across Canada - Blog 3/6
Blog 3/6 - Easter Seals When a family welcomes a child, many will say that "it takes a village"; I would say the same when someone...
Angèle Belliveau, Patient
Jul 18, 20243 min read


Traveling with PH: Angele's Family Adventures Across Canada - Blog 2/6
Blog 2/6 - PLANNING Planning is key, as long ahead as possible. I started in December 2023 for a trip in June 2024, and worked on this...
Angèle Belliveau, Patient
Jul 10, 20243 min read


Traveling with PH: Angele's Family Adventures Across Canada - Blog 1/6
Introduction: Blog 1/6 We are the Belliveau-Thibeault Family from Dieppe, New Brunswick. This year we received an opportunity to...
Angèle Belliveau, Patient
Jul 2, 20241 min read


How Timely Diagnosis Changed My Life
I was a healthy and fit 59-year-old woman living in Winnipeg, MB, at the start of 2020. Then I started feeling like something was wrong....
Mary Senkiw, Patient, Winnipeg, MB
Jun 19, 20242 min read
Sotatercept is now listed on Health Canada's website
We are pleased to announce that sotatercept, a new drug for patients diagnosed with pulmonary arterial hypertension (PAH), is now listed...
PHA Canada
May 13, 20241 min read
New Study Released for World PH Day Shows Huge Impact of Rare and Complex Lung Disease on Canadians
New Study Released for World Pulmonary Hypertension Day Shows Huge Impact of Rare and Complex Lung Disease on Canadians Pulmonary...
PHA Canada
May 6, 20244 min read


Doctors need the right tools to treat patients well, especially for rare diseases
This article originally appeared in The Hills Times on May 6, 2024 Have you ever tried to fix something without the right tool? If you...
Dr. Sanjay Mehta
May 5, 20243 min read


Dr. Jason Weatherald Discusses the Burden of PAH on the PHaware Podcast
Tune in to the latest episode of the PHaware podcast, where Dr. Jason Weatherald, a pulmonologist at the University of Alberta, delves...
PHA Canada
May 5, 20241 min read
Disparities in BC's Public Drug Plan
A recent report sheds light on the critical need for British Columbia to bolster its Public Drug Coverage. Over the past five years, BC...
PHA Canada
Apr 21, 20241 min read


Life's Twists and Turns: My Story of Living with PH for Over 40 Years
Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...
Suzanne Martin Wagnell, Patient, Larder Lake, ON
Apr 17, 20244 min read


Rare Disease Day Summit Recap: Advocacy, Unity, and the Fight for Equitable Access
Board member Joan Paulin and PHA Canada Ambassador Jennifer Bryson attended the Rare Disease Summit hosted by the Canadian Organization...
Joan Paulin, Caregiver
Apr 3, 20243 min read
The FDA has granted approval for the medication sotatercept
The US Food and Drug Administration (FDA) has granted approval for the medication sotatercept, a significant milestone in the treatment...
PHA Canada
Mar 26, 20241 min read
Canada Disability Benefit Update
On June 22nd, 2023, a significant milestone was achieved as the federal government enacted Bill C-22, officially establishing the Canada...
PHA Canada
Mar 24, 20241 min read


Tax Season is here!
Tax season is here! Before filing your taxes, determine which benefits you may be eligible for. Check out the article below to learn...
PHA Canada
Mar 20, 20243 min read


Make-A-Wish trip to Disney World
Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...
Selena McAlpine
Mar 7, 20242 min read


Managing life with multiple rare diseases
Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....
Jas James, Patient, Cobble Hill, BC
Feb 28, 20242 min read
bottom of page
