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The FDA has granted approval for the medication sotatercept
The US Food and Drug Administration (FDA) has granted approval for the medication sotatercept, a significant milestone in the treatment...
PHA Canada
Mar 26, 20241 min read
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Canada Disability Benefit Update
On June 22nd, 2023, a significant milestone was achieved as the federal government enacted Bill C-22, officially establishing the Canada...
PHA Canada
Mar 24, 20241 min read
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Tax Season is here!
Tax season is here! Before filing your taxes, determine which benefits you may be eligible for. Check out the article below to learn...
PHA Canada
Mar 20, 20243 min read
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Make-A-Wish trip to Disney World
Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...
Selena McAlpine
Mar 7, 20242 min read
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Managing life with multiple rare diseases
Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....
Jas James, Patient, Cobble Hill, BC
Feb 28, 20242 min read
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Living with Scleroderma and Pulmonary Arterial Hypertension: A Journey of Rare Resilience
Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...
Isabelle Lynch, Patient, Laval, QC
Feb 28, 20244 min read
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Recognizing Black History Month
As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...
Brin Marks, Patient, Edmonton, AB
Feb 26, 20242 min read
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Third Time's a Charm: Finding My Footing at Canada’s Rare Disease Conference
I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...
Jennifer Bryson, Patient
Jan 29, 20243 min read
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The value of volunteers
On this International Volunteer Day, I am reminded of the incredible support we receive from our community. From our Board of Directors...
Darren Fisher, Advocacy, Manager, Community & Stakeholder Engagement
Dec 4, 20231 min read
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CTV News - Ottawa school teacher living with rare Pulmonary Arterial Hypertension
Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...
CTV News / Jo-Anne Mainwood, Patient, Ottawa
Nov 24, 20232 min read
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Winnipeg City News - Raising Awareness for an incurable lung disease
Click here to watch Ella's interview on Winnipeg City News --------- After getting a second lease on life following a successful lung...
PHA Canada
Nov 13, 20231 min read
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Jane's Journey: Overcoming PAH and Scleroderma
I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...
Jane Macleod, Patient
Oct 29, 20233 min read
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Living with Hope: My PAH Journey and the Power of Perseverance
My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...
Terri Hamm, Patient
Oct 26, 20232 min read
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Surviving the Storm: My Journey with Pulmonary Hypertension and Transplantation
In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...
Ella MacLeod, Patient
Oct 26, 20232 min read
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Getting the Most of Each Day
I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...
Carolyn Mathur, Patient
Oct 25, 20232 min read
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A testament to the strength and resilience of the human spirit
In 2016, I was an active 32-year-old. My boyfriend and I were trying to have a baby, and pulmonary hypertension, a disease I had never...
Lea George, Patient
Oct 24, 20235 min read
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The Path to Reconciliation
Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours survivors of the residential school system,...
PHA Canada
Sep 27, 20232 min read
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Ready, Set, Let’s Go!
Having lived with PAH for over 12 years, I vowed never to let it control my life. Our family loves to travel, and I was not about to hold...
Marion Roth, Patient
Aug 17, 20233 min read
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One Day, One Breath at a Time: Surviving Adversity
The first time I heard the words, "I think you have Scleroderma and Pulmonary Arterial Hypertension" was in January of 2012 was from my...
Jeannette MacKeen, Patient
Jun 28, 20233 min read
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Canada Disability Benefit Act: Advancing Financial Independence for Individuals with Disabilities
Bill C-22, the Canada Disability Benefit Act, has become law, marking a significant milestone for people with disabilities in Canada....
PHA Canada
Jun 28, 20231 min read
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