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Ready, Set, Let’s Go!
Having lived with PAH for over 12 years, I vowed never to let it control my life. Our family loves to travel, and I was not about to hold...
Marion Roth, Patient
Aug 17, 20233 min read


One Day, One Breath at a Time: Surviving Adversity
The first time I heard the words, "I think you have Scleroderma and Pulmonary Arterial Hypertension" was in January of 2012 was from my...
Jeannette MacKeen, Patient
Jun 28, 20233 min read


Canada Disability Benefit Act: Advancing Financial Independence for Individuals with Disabilities
Bill C-22, the Canada Disability Benefit Act, has become law, marking a significant milestone for people with disabilities in Canada....
PHA Canada
Jun 28, 20231 min read


Patients at the Boardroom Table: Dr. Sanjay Mehta Interviews Retiring Board Chair Nicole Dempsey
This is a big year, marking 15 years of inspiration with PHA Canada. This week we are honoured to get to celebrate this milestone in...
Nicole Dempsey, Patient
Jun 4, 20231 min read


Adding My Voice as a Parent Caregiver to PHA Canada’s Board of Directors
I applied to join the PHA Canada Board of Directors in 2018 because I wanted to give back to the PH community and contribute towards...
Ed Rathonyi, Caregiver
May 30, 20232 min read


Sonya: Twenty Years and Counting…
Twenty years ago, I first heard the words pulmonary hypertension. An emergency CT scan sent me to the hospital. I was in congestive heart...
Sonya Collins, Patient
May 18, 20232 min read


Born from a Vision: Why I Joined the Other Founders to Start PHA Canada.
15 years. Wow! Has it been that long since the small group of us got together with a vision of starting a national organization in...
Sharon Proudfoot, Patient
May 15, 20232 min read


Patient Voice: Emily's story
Emily's story is featured by Patient Voice * “I was working as a litigator in Toronto when I was diagnosed with chronic thromboembolic...
Emily, Patient
May 2, 20232 min read
PHA Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs
The Pulmonary Hypertension Association of Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs...
PHA Canada
Apr 16, 20232 min read
PHA Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs
The Pulmonary Hypertension Association of Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs...
PHA Canada
Apr 16, 20232 min read


End-Of-Life Doulas
There is a rapidly growing end-of-life or death doula movement across Canada. Over the last five years, there has been a significant...
Members of the Death Doula Ontario Network
Feb 27, 20233 min read


My CTEPH Diagnosis
Greetings. My name is Stephen Winter, and I’m from Oakville, Ontario. I want to share my story about chronic thromboembolic pulmonary...
Stephen Winter, Patient
Feb 21, 20232 min read
Nova Scotia Formulary Update - February 2023
Nova Scotia published an update to their Formulary, click here to read it
PHA Canada
Feb 1, 20231 min read
PEI made Opsumit available through Public Funding
We are excited to announce that PEI has joined the list of provinces to have taken action and made Opsumit available through public...
PHA Canada
Jan 9, 20231 min read
The evolving landscape of pulmonary arterial hypertension clinical trials
In treatment trials for pulmonary arterial hypertension, looking at clinical events as outcomes instead of just 6-minute walk distance...
PHA Canada
Nov 26, 20221 min read


My Journey to Chronic Illness
My journey to chronic illness has been a long one. My official diagnosis came in 2007, but I’d had signs and symptoms for quite a long...
Nancy Lewis, Patient
Nov 24, 20224 min read


Jas' Life In Purple: 21 years since being diagnosed with PH
The 21st anniversary of my PH diagnosis came, and I had to pinch myself. I started thinking about all the things that happened on the...
Jas James, Patient, Cobble Hill, BC
Nov 21, 20221 min read
Raising Awareness of Pulmonary Hypertension One Story at a Time: Pulmonary Hypertension Association
Orillia, Ontario (November 2, 2022)PHA Canada to amplify the voices of Canadians living with pulmonary hypertension (PH) this November...
PHA Canada
Nov 1, 20223 min read


Vanda's Travel Blog: Part two
We have now returned from our trip west, unloaded the truck and now trying to relax. That isn’t about to happen with my aging parents and...
Vanda McLean, Patient
Oct 26, 20222 min read


Vanda's Travel Blog: Part One
Summer 2022, and things are opening up after being shut down by the COVID pandemic. Although COVID is certainly not over, more people...
Vanda McLean, Patient
Oct 23, 20223 min read
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