top of page
NEWS & MEDIA
PH News
Putting the PH in PHamily.
Welcome to PHA Canada’s news section. Here, you can read the latest pulmonary hypertension news, hear from patients, medical providers, caregivers, and much more.
If you are interested in submitting an article, contact us at info@phacanada.ca.
​
​Looking for inspiring stories from the PH community? Visit our Your Stories page to read experiences shared by patients, caregivers, and advocates.
Honouring Andrew Barfoot: A Day of Community, Kindness, and Legacy
On a beautiful June day filled with sunshine and warmth, our community gathered for a special fundraiser in honour of Andrew Barfoot....
Sherry Foster
3 days ago
Quick Facts: What is Yutrepia?
What it is Yutrepia is a new drug: an inhaled form of treprostinil, a prostacyclin analogue. It was just approved by the Food and Drug...
PHA Canada
Jun 3
Quick facts: Why was the ZENITH sotatercept study stopped?
The ZENITH study looked at some of the sickest pulmonary arterial hypertension (PAH) patients—those labelled as functional class 3...
PHA Canada
May 28
There's no health without mental health
"A person's mental health significantly influences how they experience pain and suffering associated with chronic disease. It's essential...
PHA Canada
May 27
What's the Canada Disability Benefit?
We asked Liss Cairns, Program Manager at Plan Institute, some questions about the Disability Tax Credit and the new Canada Disability...
PHA Canada
May 27
Rare But Not Alone: What Canada’s New Drug Strategy Means for People with Pulmonary Arterial Hypertension
Living with a rare disease can feel like walking an unmarked path—isolated, uncertain, and overlooked. For those with pulmonary arterial...
PHA Canada
May 13
New Report Exposes Gaps in BC Medication Coverage
The 2025 BC Medication Coverage Report  is here—and it reveals serious gaps in access to life-saving medications across the province....
PHA Canada
Apr 14
Sotatercept is Now in Active Negotiation at pCPA
There has been significant progress in making sotatercept available to those who need it. Just two months after Health Canada approved it...
PHA Canada
Apr 4
Two tips for tax season
Tax season is upon us! The pulmonary hypertension community brought two tips to our attention. First, the usual disclaimer: we are not...
PHA Canada
Mar 25
A Canadian Initiative: Exploring Adult Pulmonary Hypertension
New Report Sheds Light on Pulmonary Hypertension in Canada Respiplus has just released a groundbreaking report, A Canadian Initiative:...
PHA Canada
Mar 13
Did you know Canada has a Caregiver Tax Credit?
Many people know about Canada’s Disability Tax Credit, but did you know that there is also a non-refundable tax credit for caregivers? If...
PHA Canada
Mar 4
Op-ed: Speed up patient access to life-saving medications
"Imagine being told that a new treatment exists — one that could save your life or significantly improve it — but that you’ll have to...
PHA Canada
Jan 29
Take Action to Support Canadian Charities
The holiday season is the most critical fundraising period for charities, with many relying on year-end donations to sustain their work....
PHA Canada
Dec 17, 2024
A Simple Step to Save Lives: Ontario's Tax Return Initiative for Organ Donation
In an innovative new collaboration between Trillium Gift of Life Network (TGLN) and the provincial and federal governments, millions of...
PHA Canada
Dec 10, 2024
Improved reimbursements for PH patients in Northern Ontario
As of December 1, the Ontario government has improved reimbursement amounts for people in Northern Ontario who need to travel for...
PHA Canada
Dec 4, 2024
Mental health in PAH
A webinar hosted by the Pulmonary Hypertension Knowledge Sharing Platform this week talked about a couple of studies on mental health in...
PHA Canada
Oct 31, 2024
Interview with Liss Cairns from Plan Institute - RDSP Awareness Month
💜 RDSP Awareness Month is almost over , but it’s not too late to learn about the benefits of a Registered Disability Savings Plan (RDSP)...
PHA Canada
Oct 28, 2024
PHA Canada Advocates for Fair Access: September Submission to PMPRB
PHA Canada is proud to announce our latest submission to the Patented Medicines Pricing Review Board (PMPRB) Â this September. As the...
PHA Canada
Sep 11, 2024
Sotatercept (WINREVAIR®) Authorized in Canada for PAH Treatment
Merck has announced that WINREVAIR® (sotatercept) is now authorized for use in Canada in combination with standard pulmonary arterial...
PHA Canada
Sep 5, 2024
Uncovering Major Inequities in PH Care Across Canada
A new investigation, "A Canadian Initiative: Exploring Adult Pulmonary Hypertension," highlights critical issues such as diagnostic...
PHA Canada
Jul 22, 2024
Sotatercept is now listed on Health Canada's website
We are pleased to announce that sotatercept, a new drug for patients diagnosed with pulmonary arterial hypertension (PAH), is now listed...
PHA Canada
May 13, 2024
Doctors need the right tools to treat patients well, especially for rare diseases
This article originally appeared in The Hills Times on May 6, 2024 Have you ever tried to fix something without the right tool? If you...
Dr. Sanjay Mehta
May 5, 2024
Dr. Jason Weatherald Discusses the Burden of PAH on the PHaware Podcast
Tune in to the latest episode of the PHaware podcast, where Dr. Jason Weatherald, a pulmonologist at the University of Alberta, delves...
PHA Canada
May 5, 2024
Disparities in BC's Public Drug Plan
A recent report sheds light on the critical need for British Columbia to bolster its Public Drug Coverage. Over the past five years, BC...
PHA Canada
Apr 21, 2024
Rare Disease Day Summit Recap: Advocacy, Unity, and the Fight for Equitable Access
Board member Joan Paulin and PHA Canada Ambassador Jennifer Bryson attended the Rare Disease Summit hosted by the Canadian Organization...
Joan Paulin, Caregiver
Apr 3, 2024
The FDA has granted approval for the medication sotatercept
The US Food and Drug Administration (FDA) has granted approval for the medication sotatercept, a significant milestone in the treatment...
PHA Canada
Mar 26, 2024
Canada Disability Benefit Update
On June 22nd, 2023, a significant milestone was achieved as the federal government enacted Bill C-22, officially establishing the Canada...
PHA Canada
Mar 24, 2024
Tax Season is here!
Tax season is here! Before filing your taxes, determine which benefits you may be eligible for. Check out the article below to learn...
PHA Canada
Mar 20, 2024
The value of volunteers
On this International Volunteer Day, I am reminded of the incredible support we receive from our community. From our Board of Directors...
Winnipeg City News - Raising Awareness for an incurable lung disease
Click here to watch Ella's interview on Winnipeg City News --------- After getting a second lease on life following a successful lung...
PHA Canada
Nov 14, 2023
The Path to Reconciliation
Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours survivors of the residential school system,...
PHA Canada
Sep 27, 2023
Canada Disability Benefit Act: Advancing Financial Independence for Individuals with Disabilities
Bill C-22, the Canada Disability Benefit Act, has become law, marking a significant milestone for people with disabilities in Canada....
PHA Canada
Jun 28, 2023
Patients at the Boardroom Table: Dr. Sanjay Mehta Interviews Retiring Board Chair Nicole Dempsey
This is a big year, marking 15 years of inspiration with PHA Canada. This week we are honoured to get to celebrate this milestone in...
Nicole Dempsey, Patient
Jun 4, 2023
PHA Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs
The Pulmonary Hypertension Association of Canada Welcomes Federal Government Investment to Support Access to Rare Disease Drugs...
PHA Canada
Apr 16, 2023
End-Of-Life Doulas
There is a rapidly growing end-of-life or death doula movement across Canada. Over the last five years, there has been a significant...
Members of the Death Doula Ontario Network
Feb 27, 2023
Nova Scotia Formulary Update - February 2023
Nova Scotia published an update to their Formulary, click here to read it
PHA Canada
Feb 1, 2023
PEI made Opsumit available through Public Funding
We are excited to announce that PEI has joined the list of provinces to have taken action and made Opsumit available through public...
PHA Canada
Jan 9, 2023
Vanda's Travel Blog: Part two
We have now returned from our trip west, unloaded the truck and now trying to relax. That isn’t about to happen with my aging parents and...
Vanda McLean, Patient
Oct 26, 2022
Vanda's Travel Blog: Part One
Summer 2022, and things are opening up after being shut down by the COVID pandemic. Although COVID is certainly not over, more people...
Vanda McLean, Patient
Oct 23, 2022
The Canada Disability Benefit and PH
The Canada Disability Benefit (CDB) was first introduced as Bill C-35, and was originally tabled in June, 2021. Due to the 2021 federal...
Deb McCoy, Patient
Aug 2, 2022
What Is Persistent Pulmonary Hypertension of the Newborn?
That any of us survive nine months in the womb is amazing. The level of oxygen available to a developing baby in the uterus is equivalent...
Saeid Maghsoudi, Research
Jun 8, 2022
PH is a full-time job
No matter where you are on your journey, pulmonary hypertension (PH) takes up a lot of time. Between doctors’ visits, the tests they...
Kaitlyn Salonga, Patient
Apr 21, 2022
Want to improve your heart health? Get more sleep.
You have probably always been told to sleep at least eight hours a night, but people with pulmonary hypertension (PH) know that their...
Miriam Bergeret, MSc, Research
Feb 9, 2022
Life In Purple During A Pandemic: A COVID-19 update
By Dr. Sanjay Mehta, MDCM, FRCPC Founding Board Member, Eternal PHriend, Director & Past-Chair, PHA Canada Director, Southwest Ontario PH...
Dr. Sanjay Mehta
Jan 27, 2022
Advancement In PH Research
There has been immense progress in the diagnosis and treatment of PH! Research and clinical trials held around the world, much of it here...
Ashok Pandey, Research
Nov 30, 2021
bottom of page