A recent report sheds light on the critical need for British Columbia to bolster its Public Drug Coverage. Over the past five years, BC...

Hi, my name is Suzanne Martin Wagnell, and I’ve just turned 60 years old in January. My husband and I are both retired and living our...

Board member Joan Paulin and PHA Canada Ambassador Jennifer Bryson attended the Rare Disease Summit hosted by the Canadian Organization...

The US Food and Drug Administration (FDA) has granted approval for the medication sotatercept, a significant milestone in the treatment...

On June 22nd, 2023, a significant milestone was achieved as the federal government enacted Bill C-22, officially establishing the Canada...

Tax season is here! Before filing your taxes, determine which benefits you may be eligible for. Check out the article below to learn...

Our daughter, Georgiana McAlpine, 10, was fortunate to receive a wish from Make-A-Wish Canada this past July! She was diagnosed with PAH...

Lupus is an autoimmune disease that causes inflammation of the body. The most common form of lupus is systemic lupus erythematous (SLE)....

Scleroderma and Pulmonary Hypertension Comorbidities, the simultaneous presence of two or more medical conditions in a patient, present...

As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...

I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...

On this International Volunteer Day, I am reminded of the incredible support we receive from our community. From our Board of Directors...

Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...

Click here to watch Ella's interview on Winnipeg City News --------- After getting a second lease on life following a successful lung...

I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...

My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...

In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...

I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...

In 2016, I was an active 32-year-old. My boyfriend and I were trying to have a baby, and pulmonary hypertension, a disease I had never...

Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours survivors of the residential school system,...