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Recognizing Black History Month
As we celebrate Black History Month, I think of how far we’ve come and still have to go regarding race. Being a mixed-race child raised...
Brin Marks, Patient, Edmonton, AB
Feb 26, 20242 min read
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Third Time's a Charm: Finding My Footing at Canada’s Rare Disease Conference
I have had the privilege of attending multiple Canadian Organization for Rare Disorders (CORD) Conferences over the last few years. It is...
Jennifer Bryson, Patient
Jan 29, 20243 min read
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CTV News - Ottawa school teacher living with rare Pulmonary Arterial Hypertension
Click here to watch Jo-Anne Mainwood interview on CTV News Ottawa --------- Jo-Anne Mainwood has been living with Pulmonary Arterial...
CTV News / Jo-Anne Mainwood, Patient, Ottawa
Nov 24, 20232 min read
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Jane's Journey: Overcoming PAH and Scleroderma
I suffered from osteoarthritis for many years, or so I was told. I broke bones easily and had two knee replacements, one in 2013 and one...
Jane Macleod, Patient
Oct 29, 20233 min read
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Living with Hope: My PAH Journey and the Power of Perseverance
My Husband Ron and I married in 1997. I didn’t know then, but the shortness of breath and fatigue I had been feeling for the previous...
Terri Hamm, Patient
Oct 26, 20232 min read
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Surviving the Storm: My Journey with Pulmonary Hypertension and Transplantation
In July 2015, I came down with what I thought was a chest cold that never seemed to get better. I spent the next three months going to my...
Ella MacLeod, Patient
Oct 26, 20232 min read
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Getting the Most of Each Day
I first started noticing symptoms approximately seven months after the birth of my second child in 1996. In April 1997, I was diagnosed...
Carolyn Mathur, Patient
Oct 25, 20232 min read
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A testament to the strength and resilience of the human spirit
In 2016, I was an active 32-year-old. My boyfriend and I were trying to have a baby, and pulmonary hypertension, a disease I had never...
Lea George, Patient
Oct 24, 20235 min read
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Ready, Set, Let’s Go!
Having lived with PAH for over 12 years, I vowed never to let it control my life. Our family loves to travel, and I was not about to hold...
Marion Roth, Patient
Aug 17, 20233 min read
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One Day, One Breath at a Time: Surviving Adversity
The first time I heard the words, "I think you have Scleroderma and Pulmonary Arterial Hypertension" was in January of 2012 was from my...
Jeannette MacKeen, Patient
Jun 28, 20233 min read
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Adding My Voice as a Parent Caregiver to PHA Canada’s Board of Directors
I applied to join the PHA Canada Board of Directors in 2018 because I wanted to give back to the PH community and contribute towards...
Ed Rathonyi, Caregiver
May 30, 20232 min read
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Sonya: Twenty Years and Counting…
Twenty years ago, I first heard the words pulmonary hypertension. An emergency CT scan sent me to the hospital. I was in congestive heart...
Sonya Collins, Patient
May 18, 20232 min read
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Born from a Vision: Why I Joined the Other Founders to Start PHA Canada.
15 years. Wow! Has it been that long since the small group of us got together with a vision of starting a national organization in...
Sharon Proudfoot, Patient
May 15, 20232 min read
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Patient Voice: Emily's story
Emily's story is featured by Patient Voice  * “I was working as a litigator in Toronto when I was diagnosed with chronic thromboembolic...
Emily, Patient
May 2, 20232 min read
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My CTEPH Diagnosis
Greetings. My name is Stephen Winter, and I’m from Oakville, Ontario. I want to share my story about chronic thromboembolic pulmonary...
Stephen Winter, Patient
Feb 20, 20232 min read
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My Journey to Chronic Illness
My journey to chronic illness has been a long one. My official diagnosis came in 2007, but I’d had signs and symptoms for quite a long...
Nancy Lewis, Patient
Nov 23, 20224 min read
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Jas' Life In Purple: 21 years since being diagnosed with PH
The 21st anniversary of my PH diagnosis came, and I had to pinch myself. I started thinking about all the things that happened on the...
Jas James, Patient, Cobble Hill, BC
Nov 20, 20221 min read
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Patient Voice: Esther's story
Esther's story is featured by Patient Voice * “Since I moved to Canada from Trinidad and Tobago, I’ve always been on the go — working,...
Esther, Patient
Jul 12, 20222 min read
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My PHighter is Graduating!
Being the mom of an ambitious, artistic dreamer has been a fun journey. From a very young age, Brinley always said, “mom, I want to...
Jessica Marks-Cullum, Caregiver
Jun 27, 20223 min read
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Being a PH parent: Michael Mayville's story
My name is Michael Mayville, and I live in Toronto with my wife, Nicole. We are the proud parents of two children: Vance, our 8-year-old...
Michael Mayville, Caregiver
Nov 18, 20212 min read
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