Pulmonary hypertension affects people of all ages, genders and demographics, so a truly global response is required. As the only global pulmonary vascular disease charity, the PVRI is perfectly positioned to coordinate this global effort.

Phase 1 of the survey closed in September 2024. Data are being analyzed and papers are being written, but some preliminary results are available on the survey website: https://pvrinstitute.org/phgps

About PVRI: The Pulmonary Vascular Research Institute (PVRI) is the only membership charity dedicated to global pulmonary vascular disease. Its mission is to see the disease acknowledged as a major global condition, well understood and properly resourced, in order to improve diagnosis, treatment, and care for patients throughout the world. They do this by advocating for pulmonary vascular disease to be well understood and adequately resourced, collaborating globally to share and inspire cutting-edge research, and educating healthcare professionals to improve diagnosis, treatment, and care. The PVRI is a registered charity in England and Wales (no: 1127115) and a private limited company by guarantee (no: 5780068). PVRI’s website address is pvrinstitute.org, and they can be found on Facebook and LinkedIn.