The Canadian Rare Disease Network (PHA Canada is a member) has launched a national scholarship supporting youth living with rare diseases to pursue post-secondary education in Canada. People between 17 and 29 years old, with any rare disease, are eligible. Scholarships are up to $5,000 for full-time students and up to $2,500 for part-time students. There's an information webinar on May 27—register here—and applications close June 12, 2026, at 5 pm Eastern time. See the CRDN website for more...

This week is Heart Failure Awareness Week. As this year's awareness campaign says, it's not normal to be breathless! Heart failure is, unfortunately, one of the consequences of pulmonary hypertension. The right side of the heart can adapt for a while by getting thicker and stronger, but it's hard to tell why it eventually starts to fail, and this happens at different times for different patients. Raising awareness about this serious condition is important: early detection helps people get the...

Calgary/Edmonton, AB (May 4, 2026) The Pulmonary Hypertension Association of Canada (PHA Canada), along with expert physicians, are calling on Alberta to fund sotatercept (Winrevair), a new treatment for pulmonary arterial hypertension (PAH). “Pulmonary arterial hypertension is a rare, universally fatal disease involving high blood pressure in the blood vessels of the lungs, putting stress on the right side of the heart. This causes heart failure, shortness of breath with minimal activity,...