What I’d Tell My Newly Diagnosed CTEPH Self
What would you say to yourself at the moment everything changed? In this honest and inspiring talk, Derek Henderson of Toronto reflects on what he would tell his newly diagnosed self after learning he had CTEPH in 2012. From the shock of no longer being able to bike to undergoing PEA (PTE) surgery and adapting to lifelong blood thinners, Derek shares a journey shaped by resilience, humor, and hard-earned perspective. Guided by his motto — “If you’re going to be a duck, lea
Living, Grieving, and Leaving a Legacy
Living Grief Like many of you, I was raised in a culture where death was darkness, morose and devastating. When we wore black and spoke in hushed tones around the topic, bit never directly about it. IT... the word was taboo. Analogies of "going to sleep forever" and "crossing over to a better place" made the subject unattainable. My arm’s length relationship with death shrouded its mystery in a dark cloak. And then, at 37 years young, I learned that PAH was taking over. I h
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