The Call: The Power of Having a Say
Today I received the first phone call. An unknown doctor. Emotionless and professional, her question strikes quickly to the task at hand: "I have received paperwork. Tell me what's going on." Okay, big breath, I've been preparing for this... and yet I am disarmed by the sudden line of questioning from a stranger. Something deep within propels me forward and I find the simple words to define my truth: "I have been living with pulmonary arterial hypertension for 5 years. IV me
World-wide PH empowerment!
In late 2025, the Pulmonary Vascular Research Institute (PVRI) brought together people with pulmonary hypertension (PH) from around the world to create a series of short videos focused on empowerment—told by patients, for patients. Canada’s own Jane Sernoskie is featured in the video “Become a patient expert and advocate.” Thank you, Jane, for sharing your voice, and congratulations on being part of this international initiative. "Living with pulmonary hypertension (PH) is a
A Tag Team of Rare Disease Education by Kate Salonga
On Saturday, October 25th, I attended the Scleroderma Association of BC’s 2025 AGM and conference. For those unfamiliar - like myself a few weeks ago - scleroderma and pulmonary hypertension have a very interesting relationship, which is why PHA Canada usually has a booth set up at this annual meeting. Scleroderma is an autoimmune disease that causes hardening and/or thickening of the skin and internal organs. Sound familiar? That’s because scleroderma patients are at risk of
.jpg)
