Principle Investigator: Dr. Jason Weatherald, University of Alberta
This survey has been conducted by the Pulmonary Hypertension Association of Canada and the Canadian VIGOUR Centre, an academic research organization at the University of Alberta, on behalf of a pharmaceutical company.
The purpose of this study was to learn about how pulmonary arterial hypertension impacts your work and daily living activities.
We wanted to identify how pulmonary arterial hypertension (PAH) affects your daily life, which may be useful in estimating the benefits of new treatments. This study was an opportunity for you to tell us how PAH affects your daily activities, work productivity, and career opportunities.
MORE ABOUT THE SURVEY
Benefits: This survey did not provide direct benefit to you immediately. It gave you an opportunity to help research about how pulmonary arterial hypertension affects your daily life, which may be useful in estimating the benefits of new treatments.
Risks: Answering questions about your pulmonary arterial hypertension in this survey may have potentially caused you stress. If you have any concerns after you complete the survey, please contact the researcher.
Confidentiality and Anonymity: The information that you shared will remain strictly confidential and will be used solely for the purposes of this research. The only people who will have access to the research data are the research teams at the Canadian VIGOUR Centre and the Pulmonary Hypertension Association Canada. Results will be published in pooled (aggregate) format in scientific journals, but individual responses will not be published. Anonymity is guaranteed since you were not being asked to provide your name or any personal information.
Data Storage: Electronic copies of the survey will be encrypted and stored on a password-protected computer at the Canadian VIGOUR Centre at the University of Alberta for a minimum of 5 years.
Information about the Study Results: As the survey is anonymous, results will not be sent to you directly. The overall results will be available on the PHA Canada website (www.phacanada.ca) in the near future.
Contact Information: If you have any questions or require more information about the study itself, you may contact the researcher at weathera@ualberta.ca.
REB ID (Pro00130718)