Pediatrics

Once the initial shock of having a child diagnosed with a disease that most have never heard of fades, parents are left with the reality of living with PH. Although significant changes in lifestyle are often necessary to accommodate PH, most children continue to lead happy and fulfilling lives. PH parents continue to raise their families and can find ways to make day-to-day tasks a little easier while caring for their child. 

As a parent or family member, the more information you have, the more equipped you will be to advocate for your child in a variety of situations. Explore these resources to learn more about some of the issues and challenges that are unique to children living with PH and how you can help your family to deal with life with PH.