In 2021, over 400 PH patients, caregivers, and healthcare professionals responded to PHA Canada’s call and completed the Canadian PH Community Survey. The results provide a wealth of information and data that measure the physical, social, financial, emotional, and psychological impacts faced by the Canadian PH community. Additionally, the information provided will allow us to evaluate PHA Canada's 2021-24 Strategic Plan and ensure we are succeeding in empowering the Canadian PH community through support, education, advocacy, awareness, and research. Read the Report here. Thank you to everyone who completed the survey and to the patients, caregivers, and healthcare professionals who made up the Advisory Committee and volunteered their time and expertise to ensure the survey was relevant, comprehensive, and accessible. The Impact of Pulmonary Hypertension on Canadians summary report highlights the challenges faced by those living with PH, from the journey to get an accurate diagnosis to the impact of PH on daily life, including during the COVID pandemic. It demonstrates the importance of innovation to improve quality of life and for access to clinical trials, new medicines, and services such as virtual care and exercise rehabilitation. PHA Canada is already using the information gathered to determine how best to serve the PH community, including addressing gaps in disease awareness, time to diagnosis, and the impacts of PH on quality of life. Building a Foundation: The 2013 Burden of Illness Report In 2013, PHA Canada conducted an in-depth survey of the burdens associated with a PH diagnosis in Canada. This Burden of Illness (BOI) survey was national in scope and asked each respondent about their journey since their PH diagnosis. The resulting report provided a comprehensive picture of daily living with PH and has been an invaluable source of information for educating decision-makers in the complex lives of families affected by PH and a crucial advocacy tool in the years since. 2013 BOI Survey Learn more about why the survey matters and the impact the results will have on building a better future for PH Patients and their families. Webinar Cultivating Resilience (November 2021) Videos How can you have an impact on PH research by participating in the Canadian PH Community Survey? Learn more with Dr. Jason Weatherald, PH Specialist. Blog Posts Canadian PH Survey – Spark Some Change! - Joan Paulin (April 2021) Alone, We Can Do So Little. Together, We Can Do So Much – A Glance Into The Results Of The PH Survey - Samantha Gordon (July 2021)