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Lindsay Forsyth Brochu can’t wait to go travelling with her parents and husband again, or dance the night away at a friend’s wedding. But just as important, she can’t wait to be able to tie her shoes or climb a flight of stairs with ease.

“Dancing’s at the top of my list, and then getting back to travelling,” she said. “At the same time, the little ones are their own milestones.”

At 31 years old, Forsyth Brochu should be in the prime of her life. She shouldn’t have to struggle to pick something up off the floor. She should be able to walk her dogs or go hiking. Yet for the past four years those things have gone from favourite past times to difficult chores, to downright impossible.

And soon the basic bodily function of exchanging carbon dioxide in her blood for fresh oxygen to be distributed through her body may become too much. Forsyth Brochu, who was diagnosed with a rare form of pulmonary arterial hypertension called pulmonary capillary Hemangiomatosis in October 2018, faces an uncertain future as she awaits a double lung transplant.

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