If you or a loved one has been touched with pulmonary hypertension, you know that lack of awareness is one of our greatest challenges to saving lives and finding a cure. Diagnosis is often delayed due to the rare nature of this disease. By coming together to raise awareness, each and every one of us can do our part to educate health care professionals, family members, friends and the community at large on the challenges of living with pulmonary hypertension. Change cannot be created if people do not know that there is a problem. If those affected by PH do not tell others about it, no one will. By educating others about PH, you can help to save lives. Education leads to earlier diagnosis and more effective treatment. By raising your voice, you can help us to shine a spotlight on this disease and make everyone from health care practitioners to politicians take notice and pay attention.
As patients, caregivers, family members and friends, we all have a right to fight back and raise our voices to assist all those living with pulmonary hypertension to get the care that they need. Raising awareness starts at home and in your community. There are many ways that you can assist in this project. You can choose to raise awareness by telling your story, talking to the media, presenting at a local event or reaching out to others living with the disease. Nothing is more powerful and educates better than sharing the story of how PH has affected your life whether you are a patient, a caregiver or a family member. By getting active and educating others, the advocates within the PH community are transforming attitudes and helping to build awareness.
PHA Canada is available to support you your awareness efforts by providing the materials and support that you may require. For more information on how you can start raising awareness today, follow this link, take a look at the other links on the right hand side of your screen or contact the PHA Canada office today at (604) 682-1036 or firstname.lastname@example.org.
Do you have a unique idea for raising awareness in your community? We would love to hear your ideas and stories!
Raising awareness can come in many forms. PHA Canada member Paul Adams, used his musical talents to compose a song dedicated to PHers everywhere. He then enlisted some friends and colleagues to help him create a music video that has now been shared with the PH community worldwide...