One of the hardest things about living with PH is feeling no one understands what you are going through. PH can be an isolating disease and people affected by the illness can experience intense feelings of depression, stress, and hopelessness.
If you are living through a difficult time or are experiencing a particular challenge on your PH journey, you don’t have to go through it alone. We invite you to contact leaders of the PH support group nearest you to connect with other PH patients and caregivers. If you are the parent or guardian of a child living with PH, we invite you to connect with other PH families.
We understand the depth and breadth of emotional challenges that come with living with PH. In 2015, PHA Canada worked with Counsellor Alyson Quinn to develop self-help materials, including a handbook for PH patients addressing emotions associated with PH, and video capsules dealing with stress-management.
Alyson Quinn was born in Zimbabwe to Irish parents and spent her childhood years in Southern Africa. She immigrated to Vancouver and has worked as a counsellor for over 25 years specializing in group therapy and conflict resolution. Additionally she has a great deal of experience as an individual and couples counsellor. She has a Master’s degree from the University of British Columbia and a Diploma in Conflict resolution from Royal Roads University. She is an author of 3 published books: two nonfiction books about healing and a novel. She is an instructor at the University of British Columbia in the School of Social Work and has her own private practice.