Connect with a PH Family

Pulmonary hypertension is a scary and stressful disease and, as a parent caring for a child with PH, you may feel isolated in your fight. Connecting with other Canadian PH families can provide you with the support boost you need, whether you are beginning or at a new step of your PH journey.

PHA Canada’s community counts a number of families with a child suffering from PH. These families form a support network that understands the daily struggles associated with caring for a little PHighter. Meet our PH super moms Kerry, Stephanie, Sarah and Janie, who are available to provide support. They’ll tell you about their family’s story, answer your questions post-diagnosis, and let you know that you are not alone. Contact them by phone or email if you need to talk to a parent that understands exactly what you're going through.

Stephanie Ricci (Edmonton, AB)

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My name is Stephanie Ricci and I am mom to Sophia, who turned 7 in August 2015. Sophia was diagnosed at 8 months old with PH, and our lives forever changed. The first year was a roller coaster of emotions, physical changes and adjustments for everyone. Sophia has been ill for 6 years and I am finally in a position where I am comfortable and emotionally stable enough to be of benefit to others in the PH world. I have a vested interest in the pediatric PH world and would like to make a difference for the children and their families battling this illness.

Sophia has been in the school system since she was 3 years old and we have faced many challenges in this area, as well as the area of extracurricular activities, and I am looking forward to making this process easier for the children as well as parents. I am excited to be a member of PHA Canada’s Pediatric Committee, where I am working together with other members to help improve the lives of children and families dealing with PH. I hope that by sharing my experiences with others, their learning will be made easier and more manageable and someone will feel less alone.

Contact Stephanie:

Email: scmb_17@hotmail.com 
Phone: 780-988-8606

Kerry Pierce (West Lorne, ON)

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I am mom to Everleigh, a beautiful young PHighter. Everleigh was diagnosed in February 2012 with severe IPAH. My personal investment in this cause is through my daughter, and the need to make a difference for other PH parents and their children made accepting this role as an member of PHA Canada’s Pediatric Committee an easy decision to make. I live in a very small community of only 1500 people in South Western Ontario. My background is in Therapeutic Recreation and program/event planning in a variety of different areas and ages. I am looking forward to this new journey in partnership with PHA Canada, but most importantly I am very excited about helping raise awareness and shed some light on a very invisible rare disease for other parents of children who live with pulmonary hypertension.

Contact Kerry:

Email: craigandkerrypierce@hotmail.com

Phone: 519-614-3434

Sarah Platnar (Pickering, ON)

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Sarah Platnar is a High School Physical and Health Education teacher who resides in Ontario, Canada. She is an avid long distance runner. Sarah has been married to her husband Marko for 20 years and is the mother of three children: Isaac 15, Gabrielle 14 and Isabelle 10. Sarah chairs the National Pulmonary Hypertension Association of Canada's Pediatric Committee. Her youngest child, Isabelle suffers from Pulmonary Hypertension.  Isabelle has been living with PH since she was 6 months of age. Her PH is an associated diagnosis as a result of a pre-existing condition that she was born with known as Congenital Diaphragmatic Hernia. 

Contact Sarah:

Email: splatnar@phacanada.ca

 

Janie Kidd (Ontario)

     
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Janie Kidd is a grade 7 and 8 teacher in Newmarket, Ontario. 
Originally from England, she and her husband have also lived in Barbados, Alberta, and British Columbia. Janie has worked with several health and child centred organizations over the years, and has been involved with the Pulmonary Hypertension Association of Canada's Pediatric Committee since 2011. Her children are Matthew, who was recently married, Abigail, who recently completed her Master’s degree, and Gemma, her middle child, who has Down syndrome and pulmonary hypertension. Gemma is now 26, and has had this disease for her entire life as a result of congenital heart disease. Thanks to the development of therapeutic drugs over the last decade or so, Gemma is now doing well, and this year will be completing her fifth consecutive 5K at the Toronto Scotiabank Waterfront Marathon.

Contact Janie: 

Email: janiekidd@hotmail.com  

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