Mother runs London Marathon for PH

04.20.2013

Source: This is Surrey Today 

This Sunday 36,000 runners will take on the challenge of the London Marathon, raising tens of millions of pounds for good causes along the way. Many East Surrey residents will be among the runners going through the pain – and pride – barrier. Here, we hear from some of those tackling the 26.2 mile race, and let you know how to support them.

A devoted mum will endure the toil and sweat of the London Marathon to raise funds and awareness about her daughter’s “cruel” illness.​Rebecca Davies and two friends, who have called themselves Chloe’s Angels, will tackle the 26.2-mile course on Sunday to raise money for the Pulmonary Hypertension Association.Chloe Davies of Croydon Road, Caterham, was just four when the condition first reared its head and she passed out in a nursery class.

Within weeks she could hardly walk 200 yards without crying from breathlessness and leg pains. Pulmonary hypertension (PH) is an increase of blood pressure , leading to shortness of breath, dizziness, fainting, and other symptoms, all of which are exacerbated by exertion.Pulmonary hypertension can be a severe disease with a markedly decreased exercise tolerance and heart failure.One day the following spring Rebecca and her husband Darren took Chloe, now ten, for urgent medical tests after she started getting blue lips.The results of the tests – which emerged five years ago – were “devastating”.Mrs Davies, 31, recalled: “Chloe had a grossly enlarged heart which was barely able to function. We were devastated to learn that she had a life-threatening condition called primary pulmonary hypertension.“We were told Chloe wouldn't live to see her 13th birthday – and that was best case scenario.“I felt like my heart had been torn out and stamped on.”Eventually the youngster had a 24-hour catheter fitted at Great Ormond Street Hospital.It enables her to receive intravenous medication which helps to widen the blood vessels, enabling blood to flow more easily through her arteries.But Chloe, who is a pupil at St John’s Primary School in Markfield Road, Caterham, can no longer do her favourite hobbies like swimming.Mrs Davies added: “We hope Chloe will be a long time away from needing a heart transplant.“This is a cruel disease which can be kept under control with early diagnosis.“We are very lucky and extremely grateful to have Chloe with us today.”

Running alongside Mrs Davies will be her friend Sarah Skilton, 39, of Clareville Road, Caterham, and Sarah’s sister Kelly Robinson, 40, of Collard Close, Kenley.Mrs Skilton said: “Chloe has been through a lot over the last few years.“We were touched by her story and wanted to help the charity.”All three are raising funds from the marathon for the charity.

If you would like to sponsor Mrs Davies, you can visit www.just giving.com/Rebecca-Davies9

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