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Eastern Regional Symposium: A place to learn, connect & be inspired
Last year we welcomed over 220 members of the pulmonary hypertension (PH) community to our first Eastern Regional Symposium, held in Toronto, Ontario on October 13th-14th. With attendees from across Eastern Canada, we had the pleasure of reuniting with old PHriends, while also meeting many new members of the Canadian PHamily. We kicked things off on Friday night with a casual welcome reception, where a scavenger hunt helped us break the ice and g…
Direct Oral Anticoagulants Show Promising Results for CTEPH Treatment in Small Study
Direct oral anticoagulants — a type of blood thinner medication — are a safe and effective treatment for chronic thromboembolic pulmonary hypertension (CTEPH), according to a small study. The study, “Use of direct oral anticoagulants for chronic thromboembolic pulmonary hypertension,” was published in the journal Clinics. CTEPH, a rare form of pulmonary hypertension, is caused by blood clots that travel to the lungs and obstruct the lungs’ …
How New Drugs Go from Being Developed to Being Administered to Patients
Innovative research is being done around the world to develop new therapies to better manage PH. However, it can take years before patients gain access to a newly developed drug. The journey from the research bench—where ideas for new drugs originate and are initially tested—to the patient’s bedside—where treatments reach those in need—is long and complex. In Canada, all new treatments go through a rigorous approval process to ensure that availab…
Pulmonary hypertension requires multidisciplinary approach for diagnosis, treatment
Hospitalizations for pulmonary hypertension have increased from 1980 to 2002, resulting in 200,000 hospitalizations for the condition as a primary or secondary diagnosis during that time. Accurate diagnosis and optimal treatment for pulmonary hypertension is paramount for all health care professionals involved in the management of these patients. Patients with pulmonary hypertension are often treated by cardiologists, pulmonologists or a combinat…
Ottawa Masquerade Ball brings attention to rare disease on World PH Day, Saturday May 5th
Ottawa, ON (May 3, 2018)—May 5th is World Pulmonary Hypertension (PH) Day, an annual global event that raises awareness of a rare and potentially fatal lung disease that is too often misdiagnosed. For this occasion, the Ottawa PH Support Group (which is primarily made up of patients, caregivers, and health professionals) will be hosting close to 150 guests at their sold out Masquerade Ball, entitled 'Unmasking PH', on May 5th at the Hylands Go…
Concern over inequitable access to treatment across Canada is brought to light ahead of World Pulmonary Hypertension Day on May 5th
Vancouver, BC (May 1, 2018)—World PH Day is an international event that raises awareness of pulmonary hypertension (PH), a rare and potentially fatal lung disease that affects more than 25 million people worldwide, including up to 10,000 Canadians. The Pulmonary Hypertension Association of Canada (PHA Canada), who celebrated its 10th anniversary this April, will be marking World PH Day with a national awareness campaign and a public event in …
Celebrating 10 years of PHA Canada: PART 2
Sanjay Mehta, MD, FRCPC, FCCP, is PHA Canada’s Chair. He is additionally Professor of Medicine at the University of Western Ontario, and Director of the Southwest Ontario Pulmonary Hypertension Clinic at the London Health Sciences Center in London, Canada. He is also Chair of the Pulmonary Vascular Disease Committee of the Canadian Thoracic Society. Dr. Mehta has been caring for patients with PH and doing research in PH since 1989. In this episo…
Celebrating 10 years of PHA Canada: PART 1
Jamie Myrah joined PHA Canada as the organization’s first Executive Director in January 2016. She is responsible for overseeing all of their operations, including providing support and guidance to the staff in delivering programs and services. She also works closely with the Board of Directors on governance, strategic planning, public and government relations, and fund development. She works closely with Canada’s PH community to create changes th…
Genes behind deadly heart condition found, scientists say
Scientists say they have identified genes that cause a deadly heart condition that can only be cured by transplants of the heart or lungs. Pulmonary arterial hypertension kills 50% of those affected within five years, but little was known about what caused the condition in some people.
Johns Hopkins Investigators Unravel Biological Roots of Pulmonary Hypertension
Working with cells that line the innermost layer of the blood vessels, Johns Hopkins investigators say they have made a leap forward in understanding the underlying biology behind pulmonary hypertension, a dangerous type of high blood pressure in lungs that ultimately leads to right heart failure and death. By conducting experiments in endothelial cells, they discovered that a protein called KLF15 (Kruppel-like factor 15) protects these cells …
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