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Equitable drug access urged for patients with rare, potentially fatal lung disease
TORONTO, ON – December 3, 2015 – Ontarians affected by pulmonary arterial hypertension (PAH), a rare but serious, progressive and potentially fatal lung disease, gathered at Queen’s Park today to urge Health Minister Dr. Eric Hoskins to make Opsumit (macitentan) publicly accessible as a treatment choice for patients in Ontario. It is the only oral treatment proven in a randomized controlled trial to reduce long-term morbidity in patients, includi…
Living with pulmonary hypertension - A family’s struggle to deal with the fatal disease
On Monday, Nov. 16, Everleigh Pierce turned five years old. Two days later, her school, Caradoc Public School in Mt. Brydges, had planned a special event to celebrate her birthday. The school was decorated and the hallways looked like a scene taken from a Western University’s homecoming day, as all children in the school were wearing purple shirts in honour of their classmate.
PH Awareness Month story: CTV Barrie Nov 24 2015
This CTV Barrie news segment aired during PH Awareness Month and features PH Patient Linda Shadman and Dr. Jeremy Feldman who discuss Linda's diagnosis and treatment story.
A True Warrior's Warrior
Brendan is your typical seven-year-old. A Grade 2 student at Rose Valley Elementary, he likes to run around with his friends, and play the sport he loves – hockey. Problem is, he can't. Brendan was diagnosed almost three years ago with idiopathic pulmonary hypertension, a disease that severely limits his ability for physical exertion.
Professor finds likely key to cure for pulmonary hypertension
According to a recent Yale co-authored study that was conducted at the Yale School of Medicine, research on smooth muscle cell progenitors could be the key to finding a cure for pulmonary hypertension. Pulmonary hypertension is a disease in which patients experience high blood pressure in the blood vessels of their lungs. This high blood pressure in the lungs can lead to heart failure in the right side of the heart and ultimate deterioration of …
The road from diagnosis to support
In just a few months, Louise Taylor went from living an active life filled with good health to one that turned her into a fatigued, house-bound patient. “Suddenly I was very short of breath. Next came five months of tests: heart, lungs, sleep apnea and many blood tests,” she said. In October 2014, Taylor was diagnosed with scleroderma-induced Pulmonary Arterial Hypertension (PAH), which meant her heart could no longer pump blood and oxyge…
PHA Canada Challenge in Bradford
The 2nd annual Run/Walk, Swim or Bike/Spin PH Challenge, a week-long fundraiser for the Pulmonary Hypertension Association of Canada, wrapped up on November 11.
November is Pulmonary Hypertension Awareness Month
November 2015 has been proclaimed Pulmonary Hypertension (PH) Awareness Month, thanks to Rocky View County (RVC) council voting 7-1 to approve a request submitted by Langdon resident Heather Zloty.
Research Corner: The Role of the Nitric Oxide Pathway in PAH and Drugs Targeting this Pathway
Contributed by Mohamed Taha, PH Researcher In this issue, we will address some questions regarding PH therapy, more specifically, the role of the nitric oxide pathway in PAH and the drugs targeting this pathway.
New Guidelines for Pediatric Pulmonary Hypertension
Every year, nearly 1 in 500 babies are born with pulmonary hypertension, a potentially fatal heart and lung disease. Now, the first ever guidelines for diagnosis and treatment have been published in the journal Circulation.
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