Source: European Respiratory Journal Jessica K. Paulus*,# and Kari E. Roberts¶⇑ *Tufts Clinical and Translational Science Institute, Tufts University, Boston, MA #Dept of Epidemiology, Harvard School of Public Health, Boston, MA ¶Dept of Medicine, Tufts Medical Center, Boston, MA, USA K.E. Roberts, Tufts Medical Center, Dept of Medicine, Pulmonary, Critical Care and Sleep Division, 800 Washington Street, #257, Boston, MA 02111, USA. …

Source: Washington Post By Maggie Fazeli Fard, Published: May 27 Growing up in a family of 11 children, Charity Tillemann-Dick accumulated what she calls “a lovely collection of scars”: pinched skin from the time one of her brothers accidentally twisted her right arm in a playground swing; a teenage shaving nick on her right shin; a pockmark, also on her right leg, from tripping in a pothole in Russia. But the masterpiece of her collecti…

Source: American Thoracic Society By Ed Susman, Contributing Writer, MedPage Today Published: May 22, 2013 Reviewed by Robert Jasmer, MD; Associate Clinical Professor of Medicine, University of California, San Francisco and Dorothy Caputo, MA, BSN, RN, Nurse Planner PHILADELPHIA -- The investigative agent riociguat increased distance walked by patients diagnosed with pulmonary arterial hypertension, researchers reported here. In patients…

Source: Health News Network April 25, 2013 GlaxoSmithKline Inc., in consultation with Health Canada, is providing Canadians with updated information on the use of the pulmonary hypertension drug, FLOLAN®. Some vials of Sterile Diluent for FLOLAN® have been found to contain glass-related particles that may not be easily visible under normal lighting conditions. Studies indicate filtration through a 0.22 or 0.2 micron pore size filter is an eff…

Source: Health News Network April 23, 2013 Hélène Campbell announced the Give2Live Campaign, a social media effort that uses crowdfunding to support the needs of those waiting for transplants throughout Canada. "Many patients waiting for an organ transplant at Toronto General Hospital and other transplant centres are required to live within two hours of the hospital," said Ms. Campbell. "More often than not, this means uprooting from their…

Source: This is Surrey Today THIS Sunday 36,000 runners will take on the challenge of the London Marathon, raising tens of millions of pounds for good causes along the way. Many East Surrey residents will be among the runners going through the pain – and pride – barrier. Here, we hear from some of those tackling the 26.2 mile race, and let you know how to support them. A DEVOTED mum will endure the toil and sweat of the London Marathon t…

Misdiagnosis of life-threatening pulmonary hypertension (PH) didn’t matter much 20 years ago, when no treatment existed. But nine treatments now can help patients live longer and better -- if enough medical professionals know how to differentiate PH from widespread illnesses with similar symptoms such as asthma, COPD and sleep apnea. Colleen Connor of West Chester, Pa., never looked sick, but after childbirth this new mother found breathing …

Source: PHA Daily Beat "Words cannot express my family's gratitude to Robyn for her dedication to the pediatric pulmonary hypertension population and to each and every patient she treated, including our daughter." - Linda Carr, parent of PH patient Hannah Lahmeyer PHA extends our condolences to Samuel Barst, MD, on the passing of his wife Robyn Barst, MD. Dr. Robyn Barst passed away early this morning following a long illness. Dr. Barst …

A routine prescription refill about three years ago turned into a life altering event for Brenden Brinkworth after he was told that his respiratory symptoms were not because of asthma, but something much more severe. Brinkworth grew up having all the symptoms of asthma such as tightness of the chest, shortness of breath, speeding of the heart and fatigue, but while at his doctor’s office getting a prescription refilled and a general checkup, t…

Missed the March 20 deadline for sumbitting your diagnosis story photos (as announced in the March issue of the Pulse)? You are in luck! We have extended the deadline until March 31, 2013. This is a great way to get involved and help us to promote the importance of early diagnosis. Details below: We need the help of the Canadian PH community, to ensure that World PH Day in Canada is a huge success. In order to help us highlight the theme o…