PHA Canada is currently working on an awareness project and we need your help! We are putting together a short video that raises awareness of PH by showing the dreams that those affected by PH (patients, families, friends and even medical professionals) have with regards to this disease. Whether you are a PH patient, caregiver, family member, friend or medical professional working in the field of PH, we ask you to submit a photo telling us your PH dream. Your photo should be high resolu..... [more]

 source: Marketwatch.com PRAGUE, Czech Republic, Apr 19, 2012 (GlobeNewswire via COMTEX) -- An initial report from the EPITOME-1 (Epoprostenol for Injection in Pulmonary Arterial Hypertension) study of a new formulation of the drug therapy epoprostenol, marketed as Flolan(R) will be revealed today at the International Society for Heart and Lung Transplantation (ISHLT) 32nd Annual Meeting and Scientific Sessions in Prague, Czech Republic. The find..... [more]

Source: Newsweasel.com   On a snowy February morning, Helen Britt swings open the festively painted door of her suburban bungalow home calling on her guest to park closer and step carefully. Her gentle smile and cheery blue green eyes at first mask the clear plastic tubing lining her nose and upper lip. Under a soft light gently lining the furrows of her aged skin, Helen tells of the day those long omnipresent tubes became a permanent part of her life ..... [more]

Source: CBSnews.com By Seth Doane (CBS News) About 113,000 Americans are waiting for new organs, but many will not live long enough to get them. To raise awareness of the need for organ donors, one young patient is raising her voice, sharing her remarkable story of survival. Charity Tillemann-Dick was once told singing the music she loved could kill her. To an opera singer, there's little that's more precious than a good set of lungs. Her wait for a transplant was excruciating. ..... [more]

Source: Salmon Arm Observer Rick Hansen 25th Anniversary Relay participant Hannah Baskill transfers the relay medal to teacher Nora Kennett. Lynda Hooper Hannah Baskill’s smile was as bright as her daffodil-coloured team jacket, as she arrived to the point of medal transfer at King’s Christian School. Teacher and special-needs champion Nora Kennett was the medal bearer in waiting for the third leg in the relay. After Hannah transferred the relay medal ..... [more]

First Human Data for NITROSYL Examines Response to Inhaled Nitric Oxide in Cardiac Transplant Patients source: Biotechnology News Today PR Newswire   COCOA, Fla., April 11, 2012 /PRNewswire/ -- GeNO LLC (www.genollc.com), a privately held, advanced development-stage technology company, today announced that data on the NITROSYL Delivery System during Right Heart Catheterization (RHC) in subjects being evaluated for Orthotopic Heart Transplantation (OHT) and Left Ventricu..... [more]

The temporary issue we had with direct URLs not working has now been resolved. We thank you for your patience while this problem was being fixed. [more]

April 11, 2012 -   Please note that direct web links on our website (those that take you directly to a page - for example www.phacanada.ca/thepulse) are currently not working (you will be taken to a page that says, page not found), we are aware of this problem and are working to fix it. In the meantime please use the navigation bars from the main page in order to get to the section you wish to view. We hope to have this problem resolved in the next few hours. We apologize for any incon..... [more]

Registration Is Still Open for PH Kids Golf Classic The 1st Annual PH Kids Golf Classic is being held at the Mill Run Golf Course in Uxbridge, Ontario on Saturday, May 12th. The funds raised through the PH Kids Golf Classic will go to support the work of PHA Canada through projects that will assist children with PH and their families through educational opportunities, and a portion of the funds raised will go to the establishment of a Conference Scholarship Fund to allow families the oppor..... [more]

In 1990, four women gathered around a kitchen table in Florida and started an organization that would become the Pulmonary Hypertension Association (PHA). PHA has served as the center point of the US PH community's progress toward new research and treatments, increased awareness, education and support for the people who live and work with this disease on a daily basis. In celebration of PHA's 10th International PH Conference and Scientific Sessions, the conference will be return..... [more]

Source: UCLA Health and Medicine Newsroom Pulmonary hypertension (PH) sounds like an adult disease, but the life-threatening lung condition strikes children too. Ten-year-old Lucas Van Wormer is one of them. PH is like a kinked garden hose in which the pressure builds and backs up. The heart is forced to work harder to pump blood through the arteries. If the pressure gets high enough, the heart cannot keep up, and less blood circulates through the lungs to pick up oxygen.&nb..... [more]

Source: News Medical A genetic pathway previously known for its role in embryonic development and cancer has been identified as a target for systemic sclerosis, or scleroderma, therapy. The finding, discovered by a cross-disciplinary team led by John Varga, MD, John and Nancy Hughes Distinguished Professor of Rheumatology at Northwestern University Feinberg School of Medicine, was recently published in the journal Arthritis & Rheumatism. "We showed, for the first time, that the Wnt ..... [more]

  Written by: Marilyn Linton, QMI Agency Jan. 2, 2012Source: http://chealth.canoe.ca/channel_health_news_details.asp?news_id=32498&news_channel_id=159&channel_id=159&relation_id=8522 Pulmonary hypertension a rare disease that causes high blood pressure in the lungs “I don’t look sick, but you don’t know what goes on inside my body,” says Carol Doyle. The 42 year-old Georgetown, Ont., mom knew something was not right when, in 2004, just after her son w..... [more]

Source: http://www.globaltvedmonton.com/four+year+old+girl+becomes+albertas+youngest+heart+and+lung+transplant+patient/6442543397/story.html CALGARY – A four year old Calgary girl has become the youngest heart and lung  transplant patient in Alberta history. Cheyanne Mattern began experiencing breathing problems, turned blue and  fainted. She was rushed to a Calgary hospital where she was diagnosed with  pulmonary hypertension – a rare and dangerous disease for a you..... [more]

Source: http://www.newswire.ca/en/story/886135/pulmonary-hypertension-association-of-canada-showcases-national-lend-a-hand-campaign-on-parliament-hill ~ Liberal Leader Bob Rae sponsors event to show support for pulmonary hypertension community ~ OTTAWA, Nov. 29, 2011 /CNW/ - Lending a hand is a concept with which most Canadians are familiar. But when it comes to pulmonary hypertension (PH), a rare lung disease that is often misdiagnosed, the majority of Canadians are less informed. That's why ..... [more]

Source: http://www.simcoe.com/feature/article/1245554--rare-illness-makes-it-hard-just-to-breathe SOUTH SIMCOE - Bradford resident Ruth Dolan has tasked herself with making every single community in the province aware of a rare and fatal illness most have never heard of – pulmonary hypertension (PH).Her connection to PH started when her daughter Emily was diagnosed with it four years ago at age 27. It’s a crippling disease that constricts the blood vessels around the lungs, forcing ..... [more]

  http://fr.canoe.ca/infos/regional/archives/2011/11/20111106-224105.html   MONTRÉAL – Plus de 250 personnes ont marché dimanche à Montréal pour amasser des fonds pour la recherche sur l'hypertension pulmonaire (HTP), une maladie méconnue, dont plusieurs personnes souffrent sans même le savoir. Les Montréalais étaient invités à «Donner un coup de main» en écrivant un message ..... [more]

Source: http://www.medpagetoday.com/MeetingCoverage/CHEST/29302 By Todd Neale, Senior Staff Writer, MedPage TodayPublished: October 27, 2011Reviewed by Robert Jasmer, MD; Associate Clinical Professor of Medicine, University of California, San Francisco andDorothy Caputo, MA, RN, BC-ADM, CDE, Nurse Planner   HONOLULU -- Many of the sickest patients with pulmonary arterial hypertension may not be receiving recommended treatment, research..... [more]

Source: http://www.simcoe.com/news/article/1233238--event-helps-people-breathe For more information, visit phatoronto.ca The Pulmonary Hypertension Association of Canada — Toronto Chapter has announced the date of its third annual fundraising event.This year, the group’s annual gala, Let Me Breathe: A Vegas Fundraiser, will be at Brebeuf College, at 211 Steeles Ave. E, in TorontoLast year’s event netted more than $13,000 for the cause and this year organizers are hoping t..... [more]

source: Eurekalert.org IMAGE: Dr. Yunchao Su of Georgia's Health Sciences University has found the protein calpain holds promise for treating adult pulmonary hypertension. Click here for more information. AUGUSTA, Ga. – A protein critical to development appears to have a grave impact on lungs exposed to smoking and air pollution, researchers report. Blocking that protein, called calpain, in the lungs may prove an effec..... [more]