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Canadian Doctors are stepping up this Rare Disease Day to address delayed diagnosis in rare disease patients
Vancouver, BC (Feb 27, 2019)—Rare Disease Day is an international event that occurs annually on the last day of February to bring awareness of the estimated 300 million people affected by rare conditions worldwide, 3 million of whom are living right here in Canada. For those affected by lesser known and understood diseases, a timely diagnosis is often the difference between life and death. When Judith Moatti—a young mother of one living in Mon…
PDE5 Inhibitors Beneficial in WHO Group 1 Pulmonary Arterial Hypertension
Phosphodiesterase type 5 (PDE5) inhibitors were found to have statistical and clinical benefits for World Health Organization (WHO) Group 1 Pulmonary Arterial Hypertension (PAH) compared with placebo in terms of mortality, improvement in functional class, time to clinical worsening, hemodynamics, 6-minute walk distance (6MWD), and quality of life, including dyspnea, according to data published in the Cochrane Database of Systematic Reviews. In…
Balloon Pulmonary Angioplasty Can Shorten CTEPH Patients’ Hospital Stays, Study Reports
Greater experience in balloon pulmonary angioplasty (BPA) enables shorter hospital stays for patients with chronic thromboembolic pulmonary hypertension (CTEPH), reduces use of intensive care, and lowers medical costs while maintaining the procedure’s safety, according to new data from real-world practice in Japan. The study, “Shortening Hospital Stay Is Feasible and Safe in Patients With Chronic Thromboembolic Pulmonary Hypertension Treated W…
PHA Canada is Pleased to Announce the 2018 Paroian Family PH Research Scholarship Award Recipient
The Pulmonary Hypertension Association of Canada (PHA Canada) is pleased to announce that the third recipient of the Paroian Family PH Research Scholarship is Dr. François Potus, a Postdoctoral Fellow at Queen’s University’s Department of Medicine in Kingston (ON).
PHA Canada is Pleased to Announce the 2018 Mohammed Family PH Research Scholarship Award Recipient
The Pulmonary Hypertension Association of Canada (PHA Canada) is pleased to announce that the second recipient of the Mohammed Family PH Research Scholarship is Dr. Ping Yu Xiong, a 3rd year Internal Medicine resident in the Department of Medicine and a PhD candidate in the Department of Biomedical and Molecular Sciences at Queen’s University’s Faculty of Health Sciences in Kingston (ON).
CHEST Releases Updated Guidelines for PAH Treatment
n updated guideline with new recommendations for the treatment of patients with pulmonary arterial hypertension (PAH) was released by the American College of Chest Physicians (CHEST). The free guide, titled “Therapy for Pulmonary Arterial Hypertension in Adults 2018: Update of the CHEST Guideline and Expert Panel Report,” was published in the journal Chest. PAH is a progressive lung disorder caused by increased pressure in the lung blood ve…
Patrick’s story: Struggling to breathe
Imagine small, red, tree-like roots taking hold – not in the ground, but in the tiny pulmonary arteries of the lungs. These ‘roots’ of scar tissue cause masses that get caught in the lung’s vessels and block the blood flow. When this happens, the outlook for the patients isn’t good.The clinical name is chronic thromboembolic pulmonary hypertension (CTEPH). It can develop anywhere from a few months to decades after a blood clot, or acute pulmonary…
Time to end 'exploitative' hospital parking fees in B.C.: non-profit
The founder of a non-profit organization devoted to eradicating hospital parking fees says it’s time for B.C.’s health authorities to cut their addictions to parking revenue. Jon Buss’s comments come after the Provincial Health Services Authority signed a contract that will pay Impark more than $14.5 million over five years to manage Fraser and Coastal Health hospital parking lots, and that will allow the private company to keep the violation …
Singer with a rare blood pressure disorder who relies on an oxygen tank to survive tells how performing has helped her recover - surviving 5 years into her 'borrowed time'
A fatal heart condition that left this musician with the devastating news she had potentially days to live made this survivor stronger, now five years into her 'borrowed time'. Singer and songwriter, Chloe Temtchine, 35, from New York, is inspiring audiences not only with her sensational voice, but with her bravery after being told her undiagnosed heart condition meant she had little time to live.
Repeated Measurements of Biomarkers May Improve Prognostic Accuracy in PAH-CHD Patients, Study Finds
Repeated measurements of different biomarkers over time offer a better risk prediction than single measurements for pulmonary arterial hypertension (PAH) associated with congenital heart disease, a study reports. The study, “Prognostic value of multiple repeated biomarkers in pulmonary arterial hypertension associated with congenital heart disease,” was published in the European Journal of Heart Failure. PAH is characterized by increased bl…
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