Oct
15
2018 10 15 PHA Canada 10th Anniversary
Canada
10/15/2018 - 10/16/2018
All Day

Save The Date for the NORD Summit!

Mark your calendar for the NORD Rare Diseases and Orphan Products Breakthrough Summit, to take place on October 15-16 at the Marriott Wardman Park Hotel in Washington DC. This year’s theme will be “A New Era of Patient-Focused Innovation." The annual NORD Summit brings together thought leaders from across the spectrum of the rare disease community to address issues and opportunities of shared interest. Watch for upcoming news about the program, speakers, scholarships and more!  

On NORD’s 35th Anniversary: A Reminder of Why NORD & the ODA Were Needed
This year marks the 35th anniversary of NORD and the Orphan Drug Act. (The history of the two is linked.)  Read a blog about how it all began and why NORD and the Orphan Drug Act were needed.  Also, here are 35 ways that NORD serves the rare disease community.

Rare Action Network™ Releases 2018 State Report Card
NORD’s Rare Action Network™ has grown to become the nation’s largest rare disease advocacy network, spanning all 50 states and including more than 4,000 dedicated advocates who stand ready to mobilize on issues affecting the rare disease community. The RAN “State Report Card” rates states on the strength of policies of importance to the rare disease community, such as newborn screening, prescription drug access and the establishment of rare disease advisory councils. Read the recently released 2018 State Report Card

NORD Issues Response to Administration’s American Patients First 
In response to the recently announced Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs, NORD released a statement, which can be read here.

NEWS FROM NORD MEMBER ORGANIZATIONS
NORD Welcomes New Member Organizations
NORD welcomes the following organizations to its community of members:

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