Jul
20
2018 07 20 GolPH for PH 2018
Lionhead Golf and Country Club
All Day

To make a donation, or to take part in the event, visit www.phacanada.ca/golPH2018

Message from Pat Paulin, event organizer:


This event helps support the many people affected by pulmonary hypertension in Canada. People like my daughter Brooke...

Brooke began to notice a difficulty in keeping up with others during a charity bike ride in Spring of 2013. At first she thought that her shortness of breath was the result of being out of shape and thought that training harder would help. It never did.

On the morning of February 23, 2014 Brooke was walking with her sister and some friends to a local bar to watch the Olympic Gold Medal game, and halfway there her body stopped. She couldn’t breathe, she couldn’t walk, she couldn’t talk. This prompted a visit to the ER. After 10 days in the hospital and countless procedures and a referral to the Pulmonary Hypertension Clinic, Brooke was diagnosed with pulmonary hypertension. 

Pulmonary hypertension (PH) is a disease in which the blood pressure in the lungs elevates. If left untreated, PH can lead to right heart failure. Without treatment, the average life expectancy with PH is less than three years.
Brooke is now on treatment specific for the disease and is able to do more than before her diagnosis, but living with PH still poses a significant challenge for her and many patients.

 

As compared to only a short time ago (1999) when the first medication for pulmonary hypertension was approved in Canada, patients are now living longer and better lives and have hope for the future. There are now several medications approved for the treatment of pulmonary hypertension and 50% of patients survive five years or more from diagnosis. New drugs are in medical trials. Research is leading to greater understanding of how the illness works. There is hope. Events like ours are adding to that hope every day.

 

The reality is though, that pulmonary hypertension (PH) remains a debilitating, life-threatening illness with no cure. It produces progressive breathlessness and ultimately threatens life itself. It affects thousands of people across Canada; hundreds of thousands worldwide.


Proceeds from this event will support the Pulmonary Hypertension Association of Canada (PHA Canada). PHA Canada was founded to create a strong, unified Canadian PH community. PHA Canada provides leadership in awareness, advocacy, education and patient support on behalf of all Canadians living with PH.


ABOUT PULMONARY HYPERTENSION

 

 

Pulmonary hypertension (PH) is a rare but very complex and serious lung disease,which is progressive and potentially fatal. PH is defined by high blood pressure in the lungs,which leads to enlargement and weakness of the right-side of the heart—a serious type of heart failure. PH can strike people of all backgrounds, ages, and genders.

 

PH shares a number of its symptoms with other conditions, resulting in many people being misdiagnosed. Without treatment, the average life expectancy of someone with PH is less than three years. Alarmingly, many patients spend two to three years seeking an accurate diagnosis. It is estimated that approximately 5,000 Canadians have been diagnosed with pulmonary hypertension, but as many as 10,000 may be affected by the condition. While there is currently no cure for PH, thanks to available treatments, many patients are living longer, healthier lives.

For more information, please visit: www.phacanada.ca/en/about-ph/

 

ABOUT THE PULMONARY HYPERTENSION ASSOCIATION OF CANADA (PHA CANADA)

The Pulmonary HypertensionAssociation of Canada (PHA Canada) is a federally registered charity whose mission is to empower the Canadian pulmonary hypertension community through support, education, advocacy, awareness, and research. PHA Canada has been working to better the lives of Canadians affected by pulmonary hypertension since 2008. PHA Canada represents the Canadian pulmonary hypertension community, which consists of approximately 5,000 patients.

 

For more information, please visit www.phacanada.ca.

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