2018 05 02 (Alberta) Advocacy Training Workshop
9:00 AM - 3:00 PM

 Dear PHriends, 

Our colleagues over at Scleroderma Canada are pleased to invite you to an Advocacy Workshop and a visit to the Alberta Legislature on Wednesday, May 2, 2018.

The day will start at the Matrix Hotel (10640 100 Ave NW, Edmonton, AB T5J 3N8) for an Advocacy Training Workshop. Participants will learn why advocacy is important and how to be an effective advocate, as well as a brief update on the reimbursement status of Uptravi® and other medications for PAH in Alberta and across the country.

All who are interested are also welcome to join them for a visit to the Alberta Legislature to attend Question Period, and (hopefully!) for a brief “Meet & Greet” with Alberta’s Minister of Health. This will be an important opportunity to bring awareness to scleroderma and PAH and to thank the Health Minister for her Government’s ongoing support of the community.  

Advocacy Workshop and Legislature Visit Overview:


Advocacy Training Workshop                                10:00 AM – 12:30 PM (lunch will be provided)

Relocate to Alberta Legislature                             12:30 – 1:00 PM

Question Period at Legislature                              1:30 – 3:00 PM

Meet & Greet with Health Minister                    3:00 – 3:45 PM (tentative - to be confirmed)


If you are interested in attending, please see the details below to RSVP. Please RSVP by Wednesday, April 25.


To RSVP for the event:

Advocacy Training Workshop

(Matrix Hotel, 10640 100 Ave NW, Edmonton, AB T5J 3N8)

Email your name and any dietary restrictions to


Legislature Visit

(Alberta Legislature Building, 10800 97 Ave NW, Edmonton, AB T5K 2B6)

Email your name and postal code to All attendees must email their name and postal code* in order to get access to attend this portion. 

*With your postal code, we’ll confirm your MLA, and provide a note for you to send, so you can let them know you’ll be coming to the Legislature on May 2.


If you have any questions, please do not hesitate to contact Alyssa Acorn at




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