Scleroderma is a hard disease in part because no two people seem to experience it in the exact same way.  Every scleroderma story is one of courage, exploration and “forging a new path.”  It’s a path, however, that we do n.....

Dolores Rapinchuk was a loving wife, mother and Gramma. Mom loved playing hog heaven on Pogo while chatting with her numerous friends about Reimi her granddaughter who she adored. Reimi would spend weekends entertaining Gremma about dancing and music.....

"I can't seem to find any useful information for my condition on the internet." "All this medical research is really complicated; I can't make heads or tails of it." Sound familiar? As a rare disease warrior, you're your own best advocate. You kno.....