"I can't seem to find any useful information for my condition on the internet." "All this medical research is really complicated; I can't make heads or tails of it." Sound familiar? As a rare disease warrior, you're your own best advocate. You kno.....

  Who Should Take Part? Patients, caregivers, and family members – anyone who is living with PH and/or scleroderma and is ready and willing to take the first step towards empowerment by standing up for equal access to PH treatments in Ca.....

  Since 2012 the Ottawa Pulmonary Hypertension Support Group, PHA Canada and myself have put on a fundraiser/support meeting called the "6 Minute Walk for Breath" It is an invitation to you and your family and friends to come out and participat.....