As a member of your loved one’s PH support network, you are a PH Supporter. Join PHA Canada and help us fight for your loved one.

Our members make change possible: we call on them whenever rights of PH patients are under attack. The actions of our members help to put pressure on governments and decision-makers to do the right thing.

badge-02.pngWhen more individuals demonstrate that they care about an issue, the government and media are more likely to respond to that group's requests. You don’t have to have PH to be affected by it. The PH community is made up of those who have been affected by pulmonary hypertension in a variety of ways: they are patients and caregivers, but they are also brothers, sisters, friends, grandparents, parents, in laws, children, grandchildren, medical and healthcare professionals, researchers, and many others. They have all been touched by PH: they are all PH supporters. PH is their cause, a cause about which they care deeply. 

What does it mean to be a PHA Canada Supporter?

  • You don’t have to pay a membership fee.
  • You choose how much information you want to receive from us.
  • You demonstrate that you support our cause. The more supporters we have, the stronger our claims!

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What’s the issue?

Currently, the right to access treatment of choice for newly diagnosed patients is being threatened. In spring 2015, the Canadian Agency for Drugs and Technology in Health (CADTH) released a final recommendations report, which provided recommendations to provinces on how drugs for pulmonary arterial hypertension should be funded. It recommended that for all newly diagnosed patients who are diagnosed in functional class II or III, only one type of therapy should be tried first. Only if that therapy fails (that is, if the person starts getting worse) would a different therapy be funded. This is not acceptable. PH doctors need to be able to treat patients with the medications they believe will provide their patients the best long-term outcomes. Taking these decisions out of expert physicians hands is dangerous and potentially life threatening. 

What now?

It is now up to the provinces to decide if they will implement these recommendations. PHA Canada has undertaken a campaign to encourage the provinces to not adopt these recommendations, but we need your help.

In order to make an impact, and show the government that treatment choice belongs in the hands of doctors, we need a strong voice. This is where you come in. PHA Canada is encouraging anyone who has in some way been touched by PH to become a member. We have created a new PH supporter category especially for these individuals: and we are offering them free membership in PHA Canada throughout the months of September, October and November. 

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