How to get involved in PH Awareness Activities?

When you are first diagnosed with PH, one of the things you quickly learn is that Pulmonary Hypertension is still a very little-known disease.  People from medical professionals to family and friends will often have never heard of PH or how the disease affects your life. Many people feel that there is very little they can do to change this, when in fact there are lots of things that can be done to raise awareness. This is true regardless of where you live, what your background is, or how sick you might be.

What Can I Do?

There are many creative ways that you can raise awareness of Pulmonary Hypertension in your community.  Here are a few that can be done relatively easily.

November is Pulmonary Hypertension Awareness Month  

This is the perfect time to enlist the help of your family and friends to do a little something in your corner of the world to bring some attention to this life-threatening illness. Click here to learn more.

Organize a 6-Minute Walk event

During the month of November and throughout the year, members of the PH community are encouraged to organize 6-Minute Walk for Breath events in their own communities. In order to help make this as easy as possible PHA Canada has created 6-Minute Walk kits. Direct to your door, you will receive a box containing everything you need to organize a walk event: just add a venue and participants. Click here to learn more or order a Kit.

Create your own fundraising page

Creating your own personal fundraising page is an easy way to get involved without ever having to leave the house. Setting up your page is quick and easy to do. It is also a way to raise additional awareness about Pulmonary Hypertension as it allows you the opportunity to personalize your page with name, photos, and your personal journey to give your readers a better understanding of what you face each day. Click here to build your personal fundraising page. 

Have November declared "PH Awareness Month" in your community

It's as easy as writing a letter to  your local government. Learn how and see a template letter here.

Order educational and awareness materials

PHA Canada has everything you need to raise awareness of PH in your network and show your support for the cause! Visit our online store to order free educational materials and purchase awareness items. Visit our online store.

There are also many other ideas for educating others and/or raising funds to support PHA Canada:

Milestone celebrations
ask your guests to donate to PHA Canada in your honour in lieu of a gift (we can supply you with tribute donation cards) when celebrating life's milestones such as birthdays, anniversaries, weddings etc.

Share Your Story
this is probably the easiest but yet most compelling way that you can raise awareness of Pulmonary Hypertension. By sharing your story with local media you put a face to this little-known disease.  People are compelled to learn more and read on when a story has a “human side”. Try contacting your local media and letting them know that November is Pulmonary Hypertension month and you would be happy to share your story with them.

Educate Your Community
offer to give a talk to community groups interested in learning more about the disease.  This could be a local sorority, church group, hospital committee or any other group that would allow you to come in and speak.  Not only will this raise awareness, it will hopefully spark some interest within a group to assist you in the future with fundraising projects should you decide to embark on any.

Set Up An Awareness Booth
setting up an awareness booth in your local hospital or other public venue is a great way to draw attention to the illness.  PHA Canada is happy to provide you with printed materials to distribute and we also have several banners available for use.

Host a Fundraising Event
Organizing a fundraising event is a great way to raise awareness while also raising funds to support the development of new programs of PHA Canada.  There are many existing fundraising ideas that can be used, or your group can come up with an idea on their own.  Some ideas for fundraising include: dinner parties, wine tastings, and any other creative event. All of these are great occasions to bring together people you know and educate them about PH.

For assistance with organizing a fundraiser or awareness activity in your area, contact PHA Canada at beaware@phacanada.ca or at 604-682-1036 or toll-free at 1-877-7-PHA-CAN (877-774-2226).  We would also love to hear from you if you have ideas that you would like to share!

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